Today I watched Heather Artinian’s Georgetown TEDxGeorgetown Talk, “Not the Hearing or Deaf World”. Heather Artinian was the star of the popular documentary Sound and Fury and its sequel, Sound and Fury: 6 Years Later. As the daughter of two Deaf parents, Heather grew up in Deaf culture and was taught to speak with ASL from an early age. Some of her other family members like her cousin were also deaf, however, they supported and got a cochlear implant (or two, not entirely sure to be honest). While Heather supported Deaf culture and was proud of her cultural heritage, she also had many hearing friends and was eager to be a part of the hearing world. At the mere age of 5, Heather knew that she wanted a cochlear implant.
However, her parents were not fully supportive of her decision. Instead of allowing her to get the cochlear implant, the family moved to Maryland which has many more Deaf individuals than her hometown in New York did. They lived there for about 3 or 4 years until her Mom got very sick and had to go back home to New York. During her time in Maryland Heather grew up in a comfortable Deaf environment where she was taught at a Deaf school and ASL was her primary language.
When Heather returned back to New York ASL was no longer the norm and doing the simplest of things like trying to order food from a restaurant was a difficult and frustrating experience for her and her family. Heather wanted to be able to communicate with her hearing friends and to be a part of their world. This is something I can relate to very much. I feel like in many ways Heather’s story is my story. Anyway, as Heather desired to be a part of their world she once again longed for a cochlear implant and this time her family didn’t fight it on it – they allowed her to get her first cochlear implant when she was 9.
Heather has since went bilateral and she is doing very well. She is a graduate of Georgetown University and currently attending Harvard Law school. In her talk Heather focused on bridging the gap between the deaf and hearing worlds and what I loved is that Heather isn’t concerned in being in either the hearing or the deaf world – she wants to be in the Heather world which is a little bit of each world.
Watching Heather’s Ted Talk honestly made me think about my own life and where I am with always having lived in the hearing world and now wanting to learn ASL. People think it’s weird that I never learned ASL and I never belonged to Deaf culture but I didn’t really know about it since everyone I know is from the hearing world so it makes sense that I would want to be a part of that world. Sometimes I feel almost guilty for not belonging to Deaf culture. I’ve had people in a round about way also say that I’ve turned my back on my own culture or I don’t even know who I am or am supposed to be since I’m so out of tune with Deaf culture. Then there’s another part of me that wonders if I’m doing a disservice by wanting to learn ASL. Is this offensive to the Deaf community? I went my entire life trying to fit in to the hearing world and going bilateral and I think being able to hear now is the greatest thing ever and sometimes it’s mind-boggling to comprehend that some people wouldn’t want to hear even if they have the ability to with cochlear implants…and yet here I am after going bilateral wanting to learn ASL and join in the Deaf world. Is this okay or is this cultural appropriation? Have I’ve been missing out on a big portion of my life by not belonging to this culture that I maybe should have been born into? Has my entire life been a mistake for choosing not to belong to this culture? There’s so many questions I don’t have the answers to and may never have the answers to.
Why do I want to learn ASL and why now? Maybe it is because I wonder if maybe I’m missing out on something. Maybe I do want to join in with Deaf culture or maybe I just don’t know yet but I at least want to see what is there. That doesn’t mean that I’m going to go against or abandon the hearing world I worked so hard to get into. It means that whereas Heather wants to live in the Heather world I want to live in the Kimberly world. I want the best of both worlds. I don’t want it to be hearing world and deaf world – I want it to just be 1 world where everyone can co-exist.
I loved Heather’s Ted Talk. I think she is a very smart girl (she’s studying Law at Harvard after all…) and what she says really makes sense. She doesn’t just reject the hearing world the way some Deaf individuals do (I’m looking at you…Mark Drolsbaugh…) she embraces it. Heather wants to make the best future for herself and she knows that in order to do that she needs to learn to adapt to the world around her and the world around her is primarily hearing. However, Heather didn’t forget where she came from. She was never about abandoning Deaf culture. I do get the impression she prefers the hearing world hence why she chose to live with her grandparents, attend a hearing school, and notably didn’t sign during her presentation, but it will always be a part of her and something she is proud of. Heather successfully balances both world to create one universal world that makes her who she is – Heather Artinian. I think we can learn a lot from her and I look forward to hearing more from her in the future.
I was so inspired by Heather that I sent her the following message on LinkedIn:
My name is Kimberly Erskine and I am an adjunct professor and graduate student at Rowan University in Glassboro, NJ. I was born profoundly deaf but always lived in the hearing world and got by with lipreading until receiving cochlear implants in 2015 and 2016.
For my MA project I am writing a memoir about my cochlear implant experience. I have been doing extensive research on Deaf culture and ASL as well. Some of my research involved watching both of your documentaries. I also just finished watching your Georgetown TedX talk tonight. I just wanted to say you are a huge inspiration for me and I believe many other deaf/Deaf individuals as well. I admire the way you chose for yourself which world to belong to – the Heather world – and how you’re working to build bridges in both the hearing and deaf communities.
I don’t think I ever had a choice but to belong to the hearing world. I was offered to learn ASL at a young age but declined because I didn’t know anyone who was Deaf and learning to adapt to the hearing world made more sense to me. I never knew that Deaf culture was its own thing. Once I got older and began to learn more about it it completely fascinated me though. I am trying to learn more about it and hoping to learn sign language (I am applying to take an ASL class as independent study this Fall) so that I can meet more Deaf people and communicate with them.
I can understand how challenging being in both worlds might be for you at times. Sometimes people look at me weird for never having learned ASL or belonging to Deaf culture. They think that means I don’t know who I really am or they don’t understand my sudden interest in Deaf culture now especially since I can hear with my cochlear implants. Maybe in some ways I’m also still trying to figure it all out. I really loved your Ted Talk though because it was so relateable to me. I saw a lot of myself in you and your presentation.
I honestly really hope Heather responds because I think she is really cool and would like to make friends with her haha. We shall see…
This week I read 1 Corinthians 14 and it made me think a lot about the history of American Sign Language actually. In 1 Corinthians 14, Paul is talking to the church of Corinth about speaking in tongues. He acknowledges the ability to speak in tongues as being a spiritual gift from God, however, he strongly urges the church of Corinth not to practice the speaking of tongues unless everyone can do it. Paul explains this by stating, “He that speaketh in an unknown tongue speaketh not unto men, but unto God: for no man understandeth him; howbeit in the spirit he speaketh mysteries.” Men that possess the spiritual gift of speaking in tongues can use it to speak to God, yes, but they shouldn’t use it to speak with the rest of the congregation because they won’t be able to understand him. When we enter the church it should be to honor and glorify God and to help our brothers and sisters and Christ to do the same and to better come to know God and his words. If we can’t even understand what the members of the body of Christ are saying then how can we really come to know God and learn at church, let alone properly worship him in his home?
Paul went so far as to suggest that speaking in tongues could be the equivalent of just making noise without understanding what that noise actually means in verses 7-11. Here he states:
And even things without life giving sound, whether pipe or harp, except they give a distinction in the sounds, how shall it be known what is piped or harped? For if the trumpet give an uncertain sound, who shall prepare himself to the battle? So likewise ye, except ye utter by the tongue words easy to be understood, how shall it be known what is spoken? For ye shall speak into the air. There are, it may be, so many kinds of voices in the world, and none of them is without signification. Therefore if I know not the meaning of the voice, I shall be unto him that speaketh a barbarian, and he that speaketh shall be a barbarian unto me (1751).
Wow, definitely a lot of things going on in these verses! Let’s look at the first part of this first, verses 7-8:
“And even things without life giving sound, whether pipe or harp, except they give a distinction in the sounds, how shall it be known what is piped or harped? For if the trumpet give an uncertain sound, who shall prepare himself to the battle?”
A deaf person may never hear the sounds of a pipe, harp, or trumpet. You could blow that trumpet as hard as humanly possible and that deaf person may never prepare himself to battle if that’s all he has to go on because he’ll never know. To him, the sound of a trumpet is completely meaningless.
For me prior to getting my cochlear implant, I missed out on many sounds. I’ve discovered many of them since getting my cochlear implants, but every day I am also still learning more and more sounds. It’s not uncommon for me to jump a little in class as a train goes by or someone talks or fidgets or I hear an unknown sound. I’m constantly trying to define the source of the sound and what it means. This is what the congregation must’ve been like back in Paul’s time when they tried to understand what the speaker was saying when he spoke in tongues that they did not understand.
I also relate this to ASL. The Deaf community needs ASL so that they can understand what is being said in the church. To them, the verbal communication means nothing. They have no idea what the pastor is preaching without the use of ASL. They will never hear the gospel or understand the message that day. The pastor might as well be speaking in tongues because they’d never know otherwise. Here, Thomas Gallaudet’s arguments for using sign language in the church makes sense.
But hold that thought…
Thomas Gallaudet and the manualists didn’t just think that the use of sign language in the church would help the deaf to better understand sermons; they took it a step further. Gallaudet along with the other manualists felt that sign language would bring the deaf closer to God. In Tracy Morse’s dissertation, “Saving Grace: Religious Rhetoric in the Deaf Community,” she quotes Douglas Baynton’s Forbidden Signs when she says:
For manualists, this view was interpreted in Protestant terms: sign language was an original language and meant “closer to the Creation,” not inferiority (Baynton “Savages” 98). However, for oralists, sign language was associated with lower evolution or “inferior races” (Baynton Forbidden 9). Oralists made arguments that deaf students needed to learn spoken English and lip reading or they would be viewed as animals or savages (Morse 51).
Now, let’s look back to the scripture and focus on verse 11 which states, “Therefore if I know not the meaning of the voice, I shall be unto him that speaketh a barbarian, and he that speaketh shall be a barbarian unto me.
The word “barbarian” here is what stands out the most to me. Do you know who else really loves the word “barbarian”? Alexander Graham Bell who was NOT a manualist like Thomas Gallaudet, but rather an oralist that believed that the deaf needed to move away from sign language and instead learn to speak verbally and read lips and live in the hearing world.
So, what am I saying here? Do I think that this verse is saying sign language is barbaric? Absolutely not, but at the same time, it could be absolutely so. So it’s a yes and a no for me.
Here is what I think that verse is saying, or what the core message Paul has for the church of Corinth is:
We need to speak in a way that people can understand what we are saying in church so as to not cause confusion or anything that can inhibit man’s understanding of the gospel and man’s ability to honor and glorify the lord.
Back in the time of the church of Corinth, speaking in tongues was a barrier for people in the church because it might have benefited the person speaking it, but it did not benefit the church. Paul is calling for the unity of the church – everyone needs to unite as the body as Christ and work in a way that best serves God and not themselves and that involves speaking a universal language they can all understand.
What does this mean for the deaf in the church? Should they be forced to lip-read and practice the oral method? No. I think the deaf should have a right to hear the sermon in a way that is the most accessible to them. Many churches offer the hearing loop to help hard of hearing and deaf people to hear (depending on the degree of hearing loss of course). If a deaf person needs an interpreter, they should have access to it.
If the majority of church attendees are Deaf and rely on sign language, then perhaps that church should consider doing full sermons primarily in ASL, as that is what will benefit that church and help the attendees to learn and honor and glorify God the best.
We don’t have to worry too much about the speaking of tongues in modern day. 1 Corinthians 13:8 says, “Whether there be tongues they shall cease”. People cannot speak in tongues today (I acknowledge that many claim they do – I have my own feelings on that but I’ll be nice and go the route of “no comment” on that…). I think that whereas the church of Corinth had to worry about the speaking in tongues today our issue is more or less about what language or what style/tone to use in church. I think it all depends on the congregation and choosing what is the most accessible to your church goers.
Going back to the discussion on the deaf community…
In Baynton’s Forbidden Signs he explains how many oralists feared that by relying too heavily on sign language the deaf community would isolate themselves from the rest of the world. He stated:
Like their contemporaries in other fields of reform, oralists worried that the lives of people were diminished by being a part of such communities as the deaf community; they would not, it was feared, fully share in the life of the nation. The deaf community, like ethnic communities, narrowed the minds and outlooks of its members. “The individual must be one with race,” one wrote in words reminiscent of many other Progressive reformers “or he is virtually annihilated”; the chief curse of deafness was “apartness from the life of the world,” and it was just this that oralism was designed to remedy. Apartness was the darkness manualists redefined for a new world (Baynton 32).
Sign language was (and still is) very different from spoken English or any spoken language, really It’s different from what the majority is speaking and when people can’t speak our language, either they or we miss out. Isn’t this the same as what was going on in the church of Corinth in a way? Paul wanted to see the church of Corinth come together to honor, serve, and glorify the Lord and to unite as the body of Christ. Speaking in tongues was something very few church members could do that caused a separation or divide between those who could speak and understand it, and those who could not. It became a distraction that kept people from coming to know God.
Is sign language a distraction that keeps the deaf from doing things in their daily lives? It is obvious that it causes a divide from the hearing and the deaf worlds. In the church, it can make things better for the deaf and I can see how it can strengthen their personal relationships with God, but if we only signed and didn’t speak spoken English, the rest of the congregation would suffer. I don’t see sign language as being a form of language that brings a person closer to God in the sense of it’s a superior or holier language than standard English. I think it’s just another language that for some is their primary and therefore the best and for others is just another language in the world that exists but one they don’t partake in or use in their daily lives.
A few weeks ago I went to a cochlear implant support group. I’ve had some mixed experiences with these support groups. After attending my first one, I vowed I’d never come back. However, I since changed my mind and even had some pretty good experiences since then like the time I went to the cochlear implant support group about hearing preservation (and met the incredibly attractive Dr. Pelosi…but that’s another story ;)).
Since they have been getting better, I decided to make an effort to go to them on a more regular basis. The topic for the January 7, 2016 meeting was on training your implanted ear (or in my case, ears). Med-El was sponsoring the meeting and presenting and discussing their new training cds and books. Since I was just recently implanted with my second cochlear implant, I thought this would be a great meeting for me to attend.
I’ve always been a little skeptical of Med-EL to be completely honest. When it came to choosing a cochlear implant brand I narrowed my choices between Cochlear and Advanced Bionics. Med-EL was the only brand I was sure I DID NOT want because I felt they were too outdated. I always leaned more towards Advanced Bionics. Jefferson didn’t give me a choice so I was glad they chose Advanced Bionics for me, naturally, as it’s what I would’ve chosen anyway.
I had some faith in Med-El for this meeting though. I mean, aren’t all speech therapy training supplies essentially the same? How could you mess that up?
The presentation was given by a woman who worked for Med-El and who I believe was also a licensed audiologist at John Hopkins. She had one of her patients with her who was upgraded to a new processor and/or had a new mapping done that morning. They went through some words and she tried to demonstrate how the cochlear implant is a process and it’s not perfect, he might still mess up. It was a nice presentation, pretty accurate.
She also took some time to go over the new Med-El training book, cds, and online resources. She had a copy of the book. It was very expensive to buy (like $70) but said she’d leave a copy with the group and that we could make copies if we wanted, which my mom and I ultimately did. The book has been incredibly helpful/beneficial for us. That alone made going to this meeting worth it.
Towards the end of the meeting she went back to her earlier point on how cochlear implants help deaf individuals, but it’s not a miracle cure. We’re still deaf. She then used one single word to refer to us all that ruined her entire presentation for me:
She told us we were all handicapped.
I was enraged. We are DEAF but DEAFinitely NOT Handicapped!!!!!!!!!!!!!!!!
I didn’t just let this go, either. I made sure to talk to her at the end of the presentation to let her know I didn’t like that she told us we were handicapped. She apologized and said she knew and that she was really referring to children with multiple disabilities like those who are deaf-blind, deaf and autistic, etc.
It was a nice try, but I didn’t buy it because there wasn’t a single kid there and 90% of the adults lost their hearing later in life. I’m pretty sure none of us had multiple disabilities…it was just her cover.
There are few things in life that infuriate me more than being referred to as being handicapped because I am far from being handicapped. Most of us deaf individuals are always labeled as being handicapped and for most of us that couldn’t be further from the truth.
Deaf individuals like myself face a lot of hardships and much discrimination. We have to fight on a daily basis to have our voices heard and to be viewed as being equal to our hearing counterparts. We get denied employment, entrance into public schools and universities, and most of society tries to exclude us on the grounds that we are “deaf and dumb”.
I am a lot of things in life. I am far from perfect. I have done dumb things in life, but I am not a dumb person and I am far from being handicapped. I have NEVER once allowed my hearing loss to get in the way of my success in life.
I’m really not that much different from a hearing person. I don’t know ASL. I used to lipread (I still do, but I don’t HAVE to anymore). I speak pretty clearly. While I did attend speech therapy as a kid, my speech has never been that bad to begin with. I went to public schools growing up (which my parents and I had to fight very hard for as the school thought I was handicapped when in reality I simply couldn’t hear…). I played on many sports teams and was involved in many clubs. I attended a public university and earned an associate’s degree and later two bachelor’s degrees. Now I am employed for a digital marketing agency as a manager. I have had this job for 2 and a half years. I speak on the phone on a regular basis for work. I have no interpreters or special accommodations. I am really no different from a hearing person.
Society is constantly trying to put a label on deaf individuals and make us feel like we are broken or flawed or not worthy of the same opportunities as hearing individuals. “Handicapped” is far from being an innocent mistake or simply “just a word” used to describe us; it’s become a nice way of telling us that we’re “not worthy”, “not normal”, or “not good enough”.
Deaf individuals fight the stigma and the misinformation and all of these stereotypes on a daily basis. It’s rarely an easy fight. And one thing we absolutely don’t need is audiologists and representatives from cochlear implant and/or hearing aid companies fighting against us and feeding into the stigmas and stereotypes.
These individuals should be fighting alongside of us. They should understand us more than anyone and want to work to show people how the deaf really aren’t that different than the hearing.
Also, as is the case for this woman from Med-El, if you’re trying to sell us cochlear implants, you should speak in a way that gives us hope. Training your cochlear implant and your ear to hear is no easy task, as you’ve seen in my last blog post. It can be frustrating and discouraging. Labeling us as handicapped isn’t going to help matters at all, but it could make things worst. When you call us handicapped you remind us that we’re different, but if we have a cochlear implant it’s most likely because we want to hear and be like those that can hear, at least to an extent. Calling us handicapped can put a damper on all of that because you’re saying we’re different, we’re not able of doing something the hearing can do — we can’t hear. But the goal of the cochlear implant is to gives us what we don’t have that they do have — the ability to hear! Calling us handicapped is basically a nice way of telling us to not work hard and to just give up because we’ll never be like them anyway.
The idea that the deaf are handicapped is a lie. It’s a myth. It’s a diversion of the truth. It is not at all right.
To quote King Jordan, the former president of the famous deaf university, Gallaudet, “The Deaf can do anything but hear.”
We’re deaf, yes, but DEAFinitely NOT handicapped.
Got that, Med-El? Good.