I often times speak out against how frustrating it can be to have people see my cochlear implants and automatically assume that I sign. This is annoying but an easy mistake for people who are not familiar with the difference between lowercase d deaf and capital D Deaf to make. What is infuriating to me is when I tell people that I don’t sign and they don’t listen and insist on trying to sign to me anyway, such as what recently happened to me at Human Village.
I’m realizing more and more as I talk to different hearing adults that they just simply don’t understand why I don’t sign and how I can still communicate with others without sign language. People are especially confused by how I managed to get through school and to survive in a hearing world without sign language. I want to use this blog post to try to clear up some of the confusion.
Here are 5 reasons why I never learned sign language. As you read through my reasons I ask that you remember that I am and have always been mainstreamed. I am lowercase d deaf meaning that I have significant hearing loss but I live in a hearing world. I have never been a part of the capital D Deaf community. I support Deaf culture and sign language and the capital D Deaf community, but this is not my world. My experiences are unique to me just as someone else’s are unique to them. What worked for me isn’t right for everyone and vice versa.
1. It Wasn’t Practical.
I was first introduced to sign language when I was five and in the process of enrolling in kindergarten at Oakview Elementary School. My speech teacher, Mrs. Smeltz, offered to teach me sign language. My parents asked me if I wanted to learn it. They were very supportive of it but ultimately allowed me to make my own decision. I decided against it because it didn’t interest me, mainly because I didn’t know anyone that spoke sign language. It seemed to me at the time that learning it would be a waste of time and not worth the effort because I wouldn’t really have anyone to sign to. My parents would have had to learn sign language in order for me to sign with them and any friends or loved ones or honestly anyone I’d want to communicate with would need to learn how to sign in order to talk to me. It seemed much easier for me to learn how to communicate in spoken English and to learn strategies on how to exist in the hearing world than it was to have everyone I wanted to talk to learn sign language.
2. Nobody Cares About Sign Language (Except the Deaf Community).
If you are capital D Deaf, you care about sign language. It’s very, very, very important to you. Sign language is your world, and I get that and support it.
But I’m not capital D Deaf. I am lowercase d deaf living with hearing loss in a hearing world where most people don’t really care about sign language. Some people might choose to study it for fun or as a hobby, but a lot of people don’t really take it seriously.
Unfortunately, this can make learning it very difficult, especially if you try to learn it later in life like I did.
I tried to take ASL in college as an elective at Rowan University, but at the time I was enrolled in undergraduate studies (September 2010 – December 2012), it wasn’t an option. I remember asking about this before and they said they weren’t offering because they didn’t have the money/funding for it and there wasn’t an interest. This is no longer the case…ASL is seen as being almost trendy now and there are classes (which I’ll get into in a later point), but that was unfortunately not the case when I was an undergraduate student there. One of the biggest problems with how people view sign language is they see it as a hobby rather than as an actual language. This is a problem because people lose interest in hobbies and pass them off to the side to forget about when they get bored. Languages on the other hand are seen as essential communication skills needed to survive in the world. ASL sadly is not viewed in this light by people outside of the capital D Deaf community.
I to enroll in a non-credit course at Gloucester County Community College multiple times to learn ASL. It was always cancelled though due to low enrollment. They couldn’t get enough people to sign up for it as a non-credit class to make enough money to pay the instructor I guess. People will enroll in ASL if they can get college credit. It’s often seen as an “easy” and “fun” class to take for credit. But when people aren’t getting something out of it for themselves (they don’t see learning ASL as being important, especially since many of them don’t know anyone who is capital D Deaf…), they don’t see a point in learning it.
3. Learning Sign Language Was Too Expensive.
I know what you’re thinking.
“This isn’t true.”
“My best friend’s cousin’s dog sitter is fluent in sign language and could teach you for free…”
“Blah blah blah insert random noise/nonsense here.”
Okay, first of all when the concept of sign language was first introduced to me back in/around 1995, there was no YouTube.
As stated in my previous point, I didn’t want to learn sign language as a kid and could you blame me? A five year old usually has better things to do or other interests…
As mentioned in my last point, the non-credit courses were constantly cancelled due to low enrollment. These did cost money and at one point my family and I shelled out a few hundred dollars so the whole family could learn it together, but it ended up being refunded to us all after the course was cancelled.
The non-credit courses were about all that I could afford. With Rowan not offering ASL courses for credit my other option would be to take the classes at a local community college for credit but it wouldn’t be covered by my financial aid/loan and I couldn’t afford to spend that kind of money on a class that wouldn’t even count towards my degree.
Another issue with learning sign language for free – while people definitely mean well, the people offering to teach it often are not fluent or experienced in sign language. They may know the basics and a few sentences here and there but not enough to really hold full conversations in sign language, which makes it not entirely practical. Those who are really fluent and certified to teach sign language typically want to be paid for their services so they teach the college classes which I already stated I couldn’t afford to take. This isn’t true for everyone of course, but it is true in a majority of cases.
4. Learning Sign Language Wasn’t Worth the Trouble.
For some unknown reason, learning sign language was designed to be the toughest subject I could ever study or learn. I have been working to teach myself German recently and it has been a much, much, much easier experience than learning sign language which is just ironic.
Here’s a list of some things I think are easier to learn for me than sign language:
- Mandarin Chinese
- Amish quilt-making
- Homemade cheese
- Quantum Physics
- Flying an airplane
I’m serious. This has been made to be impossible for me to learn.
Backing up a bit, remember how I said that Rowan University *did* in fact get an ASL course after I finished my undergraduate studies?
Well, I tried to enroll in it as an elective as a graduate student. I tried to make my case that this course would be perfect for my graduate research since my Master’s thesis was a memoir on my cochlear implant/deaf experiences. The writing department and professors such as Dr. Drew Kopp were so supportive of this and really tried to advocate on my behalf to make this happen.
But it always comes down to one person who has a little bit too much power and is the final decision maker…
I don’t know who that one person is, but if you’re that person and you’re reading this now – just know I’m glaring at you from my computer screen. Yep. Glaring. Mad hard glare.
So here’s the shortened version of what actually happened:
Since I was a graduate student, under Rowan University’s policies I was not permitted to receive graduate level credit for what was an undergraduate class. I would need to do something more to have the work qualify as graduate-level work.
Okay, that makes sense, right? No problem. I was planning to use this course for my research for my MA thesis anyway. I would take the course as a form of an independent study and keep a research journal and check in with Dr. Kopp who would be my adviser of the project. I just finished taking his Core II course where I had to keep a research journal as I conducted research for my MA thesis anyway. This would be essentially a continuation of the work we’ve already started together.
But that one person who I am glaring at through my computer right now said that wasn’t enough.
Instead I needed a detailed description of what exactly I’d be studying and using for my research. I needed to create a very, very, very detailed research proposal about how I’d be studying students. I needed to explain what I’d ask students, who would participate, how their data would be used, and so forth. It was so much more than what I had intended to do. I wanted to learn the language, not how students used their experiences or what they thought of the course or whatever, but if it got me into the classes, I was willing to comply.
But of course it wasn’t that easy. Nothing in life is ever that easy – I had to submit a research proposal to the IRB and have it approved.
It took me several weeks that summer to put together my application for the research proposal. There were so many parts and it needed to be as detailed and specific as possible. I also realized I would need to hire an intern to help me with my research along with a videographer to film students. I would also need permission from the students. There were so many different loopholes and approvals I would need. Dr. Kopp worked with me every step of the way to help me in writing down the steps and just what I would need. We didn’t submit the application until the last minute when we were confident we had covered all of our bases.
I think I worked harder and longer on that application that I did in most of my graduate level courses combined.
And yet, the application was STILL denied for many, many, many different reasons. The overall theme was that they needed more specific information and more approvals from people involved.
I was tired and getting burned out and the class wasn’t even approved yet, let alone started.
After having my application rejected I decided not to move forward and just accept that I wasn’t going to learn ASL that semester (or even study people who would learn it). I accepted my next point…
5. I Wasn’t Meant to Learn Sign Language.
God’s ways are better than mine. Every time I tried to learn sign language he put roadblocks in my path that prevented me from learning it. Sometimes this seemed extreme, as was the case with the hardships I faced trying to take the ASL course in grad school. He simply did not want me to learn it. I will never know exactly why he didn’t want me to learn it until I am face to face with him in heaven and have a chance to actually ask him, but I do have a few theories.
Have I had learned sign language, my life would be very different. I may not have been mainstreamed like I am today and I may not have accomplished all that I have. I know that these is controversial and this statement may infuriate anyone from the capital D Deaf community who may be reading this, but you can’t deny the fact that it’s true:
Not being able to interact in the hearing world will hold you back in society. Is it right? No, it’s not. But it is the truth.
If I learned sign language from an early age and made it my dominate language and chose to become a part of capital D Deaf culture, I may not have been as prepared for the “real” world because my communication skills may not have been as good. I wouldn’t have had to rely on lipreading as much and I wouldn’t have learned ways to navigate the hearing world because I wouldn’t have had to. I probably wouldn’t have went to mainstream school, let alone college, and wouldn’t have had the same experiences and may not have had as many job opportunities.
I know it’s not right, but the world is designed to operate for people who can hear and while it’s discrimination, employers get away with it. Most employers don’t want to hire someone who can’t hear, especially if they need a lot of accommodations such as sign language interpreters. These things cost money and people don’t want to have to pay for it and if employers aren’t the ones responsible for paying for it (ex – if health insurance or disability services cover it…I admit I’m not entirely sure how this works) it still won’t change the fact that employers will view it as a hassle that they may not want to deal with. Meetings will take longer, phone calls may go on unanswered, and work days may be less productive. Again, I’m not at all saying I agree with this. It’s horrible and it should not be this way, but you can’t deny the fact that this is how the world operates and even anti-discrimination laws can’t change the way people think and feel – that’s something only God can change.
If you want to get ahead in life, you need to be able to sell yourself and adapt to the outside world, knowing that a majority of people exist in a hearing world. This is similar to how a majority of the world speaks English (and most of the US). If immigrants want to get ahead and make a future for themselves in America, it is very wise for them to learn the language. We can and should support them by trying to speak their native language or becoming familiar with it and offer translators, but at the same time it is easy for them (and perhaps more practical) to learn our language then having all of our people try to learn theirs.
Have I had learned sign language, I may not have ever gotten cochlear implants. I know that this isn’t the right path for everyone to take, but it was the right path for me. My cochlear implants have opened a whole new world of opportunity for me and greatly improved my quality of life. If I had sign language then getting cochlear implants wouldn’t have mattered or been a priority for me and I would’ve missed out on so many amazing experiences (not to mention sounds!)
And yes, I did try to learn sign language post-cochlear implants. I am not sure why God still doesn’t want me to learn it, but I even have my theories about that, too. I am still training my brain to hear sounds and I imagine I will for the rest of my life since there’s always something new to hear. My hearing is fantastic now and “almost” perfect, but it will never be natural. I will always need a minute to think about and process what I am hearing. I’m never going to “just hear” – my body is not capable of that. If I would’ve learned and became fluent in sign language I may not have had the need to work so hard at hearing the sounds and training my ears post-cochlear implants. Simply put, I may have gotten lazy with my training and rehab.
Sign language is important and should never go away. I understand the point oralists were trying to make way back when and I agree that being able to communicate in a hearing world without sign language will help the deaf to advance in society. However, sign language is a tool or a strategy that works better for some than for others. For some people they may be the son or daughter of Deaf parents born into the capital D Deaf culture where sign language makes the most sense for them to use. For others like myself, lipreading and cochlear implants are better tools to help prepare us for the hearing world we choose to live in.
There are some people who absolutely need sign language, but I am not one of those people and I shouldn’t be made to feel bad or wrong about my decisions. As a child I was able to get by in school and society through lipreading, sitting in the front of class, reading a lot of books and text to gather messages, and relying on others to lend me their ears when in need. As I got older, cochlear implants gave me nearly perfect hearing. In either case, I managed without sign language and I regret nothing. I was still able to live a happy and fulfilling life and never felt cut off from communication.
Everyone has their own communication preferences, especially those who are living with hearing loss. It is important to remember that no two people are exactly the same and just because some individuals with hearing loss sign, doesn’t mean that they all do and it’s perfectly fine if you choose to sign or not to sign. It’s a personal decision and you should never feel the need to apologize for the way you wish to be spoken to. People should respect your decision and if they don’t understand it, they should take the time to ask questions and educate themselves so that they can learn rather than judging, speaking for or on behalf of someone else, or flat out ignoring someone’s requests or communication preferences.
The purpose for today’s blog is to answer some of the most commonly asked questions about deaf people. These five questions came from the most searched terms related to the keyword “deaf” according to SEMrush. Please note that I am answering based on my own personal experience as a lowercase deaf individual who has profound hearing loss but has never been a part of the Deaf community.
1. Can Deaf People Drive?
Yes, and I just ran over the last person that asked me that question.
But seriously, why wouldn’t a deaf person be able to drive? If you’re deaf-blind then okay I can definitely see why you wouldn’t be able to drive (no pun intended), but this question specifically calls out deaf people, not deaf-blind people. While being able to hear things like sirens would certainly be beneficial for driving, it’s not actually a requirement so long as you can see.
Did you know most deaf people actually have really strong perceptive vision? My boyfriend is always amazed by my ability to spot a car coming from miles away because I can always see the lights out of the corner of my eye. Since deaf people can’t hear, they rely on the eye sight to make up for it. What this means in terms of driving is that deaf people will always be alert and aware of their surroundings and they will be able to see the flashing sirens, even if they can’t hear them. Some may even argue that BECAUSE deaf people can’t hear they will actually be more careful and cautious drivers. That of course is up for debate. I’ll let you know the verdict on that one once I receive my license. 😉
2. What language do deaf people think in?
Seriously? This question is so dumb it makes my brain hurt.
Deaf people think in the same language(s) they speak in. This goes for all deaf people including those who are deaf with a lowercase d, those who are culturally Deaf and use sign language, and those who are non-verbal. Just because you’re deaf does not mean you lose your ability to think or that the way in which you think is any different from that of a hearing person.
Also, those who are non-verbal may still be able to understand spoken and written language and will still very much have a native language (or maybe even more than one). I think that one thing that most people get wrong about deaf people that are non-verbal is that they assume that because they are non-verbal they must be dumb. In actuality, most deaf people that are non-verbal choose not to speak with their voice because they can’t hear themselves speak and it’s a self-conscious thing or not something they feel comfortable with. Some of them may not have had speech therapy, so they may be aware of the fact that their pronunciations may seem strange to someone who is hearing which may make them feel uncomfortable. Others may have limited hearing and not like the sounds of their own voice. Whatever the case may be the important takeaway here is that even non-verbal deaf individuals can be highly intelligent and most often are.
Similarly, some people may be under the wrong impression that culturally Deaf individuals that are fluent in sign language must not be able to think in that language since sign language is a non-verbal language. This assumption is also false. I could be wrong, but I have a hard time imagining deaf people thinking in terms of signs. Rather, I think they think like you and me do in their own native languages.
It’s important to note here that sign language is not a universal language; there’s actually many variations of it. American Sign Language most closely resembles the French written language, but there’s also British Sign Language, South African Sign Language, Afghan Sign Language, and hundreds others even including Jamaican Sign Language! While not a verbal language, they still hold many of the same structures as verbal and written languages do including having verb tenses, parts of speech, subject-verb agreements, etc. When deaf people think I believe that they are thinking in terms of these sentence structures even if they aren’t actually hearing spoken language.
3. Can deaf people talk?
This kind of goes back to what I was saying in my last answer. Generally speaking, the answer is yes nearly all deaf people are CAPABLE of talking. However, some Deaf people may choose not to talk with their voices.
It’s important to note that many Deaf people, and even myself as a lowercase/non-culturally deaf individual hold the belief that you don’t need to use your voice or to speak to communicate. “Talk” means to say something verbally, but “communicate” means to simply share or exchange information, news or, ideas. There are many ways in which a person can communicate. Many Deaf people prefer to use sign language to communicate, but even that isn’t their only option. For me personally I prefer to communicate via social media, E-mail, text messages, and hand-written notes.
4. How do deaf people think?
With our brains, duh.
This bothers me though since so many people think that deaf is synonymous for dumb or learning disabled. Yes, some deaf people have other disabilities including learning disabilities or lower IQs, but as with all things in life, this doesn’t mean ALL deaf people have learning disabilities or low IQs.
In fact, there are many deaf people who are highly intelligent. Some of the smartest deaf people include:
- Laurent Clerc – The first deaf teacher in America who founded the very first school for the deaf in North America. He was extremely influential in showing that not all deaf people are “deaf and dumb”
- Thomas Gallaudet – a teacher whom Gallaudet University is named after; he co-founded it with Laurent Clerc
- Heather Whitestone McCallum – The first, and quite possibly to this day only, deaf Miss America. She is an influential advocate for deaf rights and she also served on the United States’ National Council on Disability in the past.
- Juliette Low – The founder of Girl Scouts in America
- Rush Limbaugh – An American talk show host and Republican political commentator
- Alexander Graham Bell – Inventor of the telephone
- Vinton Cerf – the “Father of the Internet”
- Thomas Edison – A famous inventor
- Helen Keller – The first deaf-blind woman to earn a bachelor’s degree. One of the most famous women in US history.
Deaf people think in the same way that non-deaf people do. I know it may sound strange, but like I said earlier, you use your brain to think…not your ears.
5. How do deaf people date?
Girl meets boy.
Boy meets girl.
Girl likes boy.
Boy likes girl.
Girl asks boy out.
Boy asks girl out.
Girl and boy live happily ever after.
Boy and girl live happily ever after.
But no, seriously. Dating is dating is dating is dating. It really doesn’t matter if you’re deaf or hearing, it’s all the same.
With that being said, some deaf people only date other deaf people. This may be due to them having a lot in common with their hearing loss and being able to relate well to one another. Those who are capital D Deaf may choose to only date others who are either capital d Deaf or even lowercase d deaf because it fits in with their culture. These individuals use sign language as a primary language and likely attend a Deaf school and exist in Deaf world. They may have limited access to mainstream society, so this is probably what they are most comfortable with.
In my own personal experience I’ve only ever dated people who are hearing. It’s not that I am against dating another deaf or even Deaf person, it’s just that I never really met one that I was romantically interested in and now I have found my forever person who happens to be hearing. This is likely because I’ve always been mainstreamed and lived in the hearing world. I do not know any sign language and I am not a part of the Deaf with a capital D culture. Dating a hearing person comes naturally to me and is what I am comfortable with.
Just as non-hearing people have their preferences and likes and dislikes and turn ons/turn offs and deal breakers and makers, so do deaf people.
But when it comes down to actual dating, it’s pretty much the same. Deaf people still like to go out to eat, watch movies, go bowling, go golfing, go shopping, etc.
Some deaf people may prefer to go to places that are quieter so it’s easier for them to hear. Well-lite places may also be helpful so that they can see and read lips or see signs more clearly if they use sign language as a primary means of communication. But for the most part, deaf people are just looking to have a good time the same way hearing people are.
I hope my answers to the five most commonly asked questions on being deaf helped to shed light on what it’s really like to live without hearing. The most important thing I hope you take from today’s blog post is that the deaf can do anything the hearing can do except hear. We all want to be treated the same as a hearing person would be treated because we *are* the same. Our ears don’t work but we still have the same needs, desires, passions, interests, and lifestyles for the most part.
Hey guys, so the name of this blog is Confessions of a Def Deaf Girl, right? Well, I have a confession for you all today:
I never went to my high school prom.
Overall, I have no regrets. I didn’t want to go to my prom back in high school because junior year none of my friends went and my senior year prom was being held in my former hometown that I wanted no parts of. I thought it was a waste of money to spend hundreds of dollars going back to the town I lived in for nearly a decade and didn’t enjoy, so I didn’t go.
I don’t care much about skipping my prom, but sometimes I do still wish I would’ve had a chance to get all dressed up and go dancing. Needless to say, when I saw that Human Village Brewery was hosting their first ever “beer prom” where attendees were strongly encouraged to dress up in prom attire, I jumped at the opportunity to go.
So I grabbed my prom date, Evan, and we both donned some of our formal attire (nothing too crazy – we were worried no one else would go through with it!) and headed to the brewery!
Human Village put on such a great event. They closed the brewery early that night to prepare for the prom (which took place during what is normally their after-hours/closing time). They went with a beach/nautical theme and decorated the walls with pool floats such as blow up dolphins, whales, beach lizards, beach balls, etc. The owners all got dressed up in prom attire as well. They offered the first round of drinks for free with the purchase of a ticket and also had free snacks such as Chick Fil A chicken nuggets (with their famous sauce!), Philly soft pretzels, a veggie tray, popular prom appetizers like cocktail hotdogs, and more.
Evan and I’s friend, Ian Goode’s band, The Collective Force, performed all night long minus about an hour where some crabby old person (or at least that’s what I assume) tried to call the cops on the event due to noise. They played some popular prom and beach themed songs along with popular radio hits that everyone recognized. At one point everyone at the prom even joined together to form a love train going all around the Brewery!
Evan and I danced to a handful of fast songs and just about all of the slow songs. We are always looking for opportunities to go slow dancing together, so we finally had our chance at the prom and he made waiting 29 years to go to prom worth it. He’ll always be prom king in my heart!
Towards the end of the night, however, Evan left for about 10 minutes to use the bathroom and I waited at our table by myself. During this time two girls approached me and asked me to dance with them. I felt a little strange about it since I didn’t know them, but there was a family-feel to this event with everyone dancing with everyone all night long and I assumed they just didn’t want me to be by myself at the table so I joined them and kept thinking in the back of my head Evan, please hurry up and rescue me.”
A few minutes in they asked me if I was deaf. I told them that I was. The rest of the conversation went like this:
Girl #1: *Points to Girl #2* We both study ASL at Camden County College.
Me: Oh, that’s cool. I don’t sign.
At this moment Evan finally came back from the bathroom and hugged me from behind, which naturally scared the crap out of me since I never saw him and the girls laughed and introduced themselves to him as well.
Shortly after Evan and I were reunited, the conversation with the two girls resumed.
Evan: She has cochlear implants.
Me: Yes, I can probably hear better than you can right now. I can hear everything. I have about 97% total hearing with my cochlear implants. I just can’t hear when I take them off.
Girl #1: Do you ever take them off when you don’t want to hear?
Girl #2: That sounds useful. I wish I could do that!
Me: Yeah, it definitely comes in useful. It helps me to focus and concentrate more on what I’m reading.
The conversation then died down with them a bit as Evan and I went our separate way and had our own conversation. It was getting towards the end of the night and things were wrapping up. We were saying our good byes to Ian and talking to the owners about some of our favorite craft beers and asking about what some of there upcoming releases would be.
As we were leaving the two girls said goodbye to us and then thanked me for talking to them about my experience with cochlear implants and being deaf.
There was just one problem…
They were signing to me. Instead of actually saying “Thank you” they signed it to me. Fortunately I knew what this sign meant, but I still couldn’t help but be annoyed since I literally just explained to them how I didn’t sign.
This is one of my biggest pet peeves when it comes to people wanting to know more about the deaf/Deaf communities – people who aren’t from either community (meaning they have no hearing loss or real experience with those who do). People take ASL and automatically think it gives them a right to enter these communities or they think they know everything about what it’s like to be deaf/Deaf. But they have no idea.
Not everyone with hearing loss is a part of the Deaf with a capital D community. Not everyone with hearing loss knows sign language. I for example know hardly any sign language at all. Signing to me is highly ineffective as I won’t know what you’re saying. My preferred method of communication is verbal or text. In this scenario I could hear the two girls perfectly fine. I never once had to ask them to repeat themselves and I explained to them very thoroughly and clearly that I could hear everything perfectly fine – conversations, music, etc.
What bothered me the most wasn’t at all the fact that they tried to sign to me, it was the fact that they didn’t listen to me. Half of the problems in the world I think stem from people not taking the time to truly listen to one another. This causes miscommunication, confusion, and disconnects in how we converse with one another.
For those of you who are reading this in hopes of gaining a better understand of what it’s like to be deaf/Deaf or hard of hearing…for those of you who want to learn communication strategies for how you can best talk to those who are deaf/Deaf/hard of hearing my advice to you is short, sweet, and simple:
Don’t just assume that every deaf/Dead/hard of hearing person you know automatically knows and prefers to use ASL.
Don’t assume that they are all verbal.
Don’t assume that because someone has cochlear implants they can hear perfectly fine (this is true in my case, but not true for everyone).
Most deaf/Deaf/hard of hearing people will be more than happy to explain their communication preferences to you and to have a conversation and to educate you on their world, but if you choose our communication preferences for us and assume you already know everything, you’ll miss out on these opportunities to really get to know us and engage with us (and you may be completely rejected by us anyway if we can’t effectively communicate with you).
There is nothing wrong with being hearing and wanting to talk to someone who cannot hear, but there is everything wrong with choosing for someone else how to communicate with them and not listening to their needs or preferences. We have our own unique voices and HATE being silenced, so give us a chance to use our voices and sit back and listen to us before you speak for us.
Image Credits: Pulse Magazine
I have a confession to make. If you’re deaf or hard of hearing like myself, than this should come as no surprise. In fact, if you’re deaf or hard of hearing like myself, you yourself are or probably have been in the same boat at one point or another. Here it is:
For years I have dealt with anxiety issues in social settings and in non-social settings. I also have struggled to sleep at night due to my anxiety and have had to take sleeping medication if I wanted to have any chance of falling asleep at night.
I am not along. Anxiety is very common in the deaf and hard of hearing world. There has been countless studies that link anxiety with hearing loss. The reason is simple: many deaf individuals are part of a hearing world, whether voluntarily or involuntarily. Even those who say they operate in a predominately deaf world will be forced to interact with the hearing world on almost a daily basis. It’s definitely not easy and a major cause of anxiety.
If you want to be technical, I am deaf but not Deaf. You may not be able to see a difference in these two words, but those with hearing loss knows what it means. To be deaf means you have a significant hearing loss, or no hearing at all, but you interact in a hearing world. To be Deaf with the capital D means that you have no hearing and you operate in a Deaf world. So what’s the difference?
Those who operate in the Deaf world sign. Their world is almost entirely silent. They go to special deaf schools. Their friends are more than likely all deaf, or at least always sign to them. They try to avoid being a part of the hearing world as much as possible. In contrast, those in the hearing world do not go to a special school. They strive to interact with the hearing world as much as possible. I fall into this later category.
Prior to getting my cochlear implant, interacting in the hearing world was very difficult for me. Not being able to hear can definitely cause a bit of anxiety. Here are a few examples.
I went to college. Not just any college, but Rowan University. A public university. I was a really great student and my professors loved me. I had two majors (English and Writing Arts) and a separate concentration (Creative Writing). These were all pretty unique majors that called for much discussion in class. My professors loved me and knew I was a good student, so they always liked to hear what I had to say. However, sometimes I had no idea what was going on in class. I tried my best to lipread. I have been deemed an “expert” lipreader. However, even experts aren’t always necessarily perfect. Sometimes people had a unique tone to their voice and it was out of my hearing range. The worst was when the chairs were arranged in single rows. I always sat in the front of the room to hear my professor, but I could never hear my classmates since they were behind me and I couldn’t see their lips to lipread. Sometimes I really wanted to talk about the book I just had to read in class. Sometimes I had a lot to say. But a lot of the times I was too afraid to say anything since I wasn’t able to follow every word or most of it and I wasn’t entirely sure what was going on. I would pray that the professor wouldn’t call on me because I didn’t want to look like I haven’t read or wasn’t paying attention. That’s how I always appeared, but the truth was I was paying attention! I was paying such close attention that I was exhausted from trying to figure out what was being said! But most professors don’t understand that.
There are two instances that really stand out in my mind as awkward post-cochlear implant college experiences. Once was during one of my first creative writing classes. My professor really liked me and wanted my feedback on many occasions. She was my favorite professor actually. I did pretty well with following along most of the time, but for some reason I really struggled on this particular day. I think the desks were rearranged making it harder for me to see my classmates and lipread or something. Needless to say, she asked me a question and I had no answer because I had no idea what was going on. I kindly explained that I couldn’t hear anything. My professor understood, but got pretty embarrassed. She apologized profusely to me, which made me feel a bit embarrassed and awkward myself. By trying to make things better, she kind of made it worst.
The other instance was with my Writing Children’s Stories class. Originally I was signed up to take the course with a British professor. He was an extremely nice guy, but I couldn’t understand a word he said. He had a strong accent and his voice was in a tone that was out of my range. I was never going to do well in his class simply because I couldn’t understand a word he said. I needed the course to complete my creative writing concentration, but the other professor who taught the class didn’t have any openings. I had to fill out a special form to get into her class. Unfortunately, this form had to come from the Academic Success Center. I’ve talked to the people over their multiple times and they were always super friendly and more than willing to help in anyway they could. However, they couldn’t help without having me first register as having a disability, something I never wanted to do. But I needed help, so I did what I had to do. Then I got into the class. I was able to hear my professor just fine, but 95% of the time during class, I never heard a word that my classmates said. Needless to say, the class was a bit less enjoyable than I anticipated.
Another time when my hearing loss was a great cause for anxiety was whenever I had to order food out. I always tried to avoid it as much as possible. When I was in college I would usually buy food from the little convenience store on campus where I could just grab something and have them ring it up for me with little to no conversation. I did try to order food from the various on-campus food places a few times, but it was always an incredibly awkward experience since I could never hear the person taking my order or making my food or telling me my order was ready. If I went out to a restaurant, I would make my family/friends/significant other order for me and translate what the waiter/waitress was saying for me. Then I would apologize or have that person apologize profusely to the waiter/waitress and explain that they were answering for me since I couldn’t hear. Pretty awkward. I would avoid going to bars like the plague. I tried it once with my ex and never wanted to do it again. It was so loud and noisy. I couldn’t have a conversation or hear anything and the noise didn’t sound like televisions or music the way it did to most people. I couldn’t understand what the noise was. To me it was just that…loud noise.
Now that I have a cochlear implant though, none of these problems seem to matter much at all. Unfortunately, I am not in college anymore so my college troubles are definitely a thing of the past (though I’ve definitely thought about going back to school on multiple occasions. Problem is, I have no idea what I’d want to go for…). However, I do work for a digital marketing agency. When I first started working here some of my coworkers thought I was pretty quiet. Just like I couldn’t hear in school, for the longest time I couldn’t hear well at work. This also caused me great anxiety. When we had department meetings I could never hear my coworkers. My former boss from my inbound marketing/social media marketing days has a tone to his voice that was out of my range so I hardly ever understood a word he said. The same was true for my co-workers who were from New Hampshire. And the phone? Forget that. If I ever needed to make a phone call I’d have to get another co-worker or my boss to do it for me. I couldn’t hear on the phone at all.
Now I’m actually a Social Media Project Manager and Assistant Digital Marketing Manager. Without my cochlear, I don’t think this could have been made possible. I am able to speak during department meetings and hear my coworkers. This means my communication with them has improved tenfold. I am able to help other coworkers with projects and discuss our clients with them face-to-face, whereas in the past I relied solely on IM since I could never hear them well enough in person. I talk on the phone with clients, especially those that I manage, on an almost daily basis. While I was a little awkward on the phone initially, I have improved greatly and am now able to speak very confidentially because my anxiety is just about completely gone. I can hear. There’s no need to be so anxious anymore.
I can’t remember the last time I seriously struggled to order food out. I have been out to eat countless times since getting my cochlear with my boyfriend and my family. I’m able to order food on my own without being dependent on others. If things get too loud I can just switch my settings around to block out the background noise. Eating out suddenly became much more enjoyable and less anxiety-ridden!
And my sleeping pills? I can’t remember the last time I had to take them either. There seems to be a whole lot less things keeping me up at night. I haven’t needed them. I am much less drowsy during the day now. Or to say it more simply, I’m living my life free of anxiety and I couldn’t be happier.