Tag Archives: hard of hearing

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I often times speak out against how frustrating it can be to have people see my cochlear implants and automatically assume that I sign. This is annoying but an easy mistake for people who are not familiar with the difference between lowercase d deaf and capital D Deaf to make. What is infuriating to me is when I tell people that I don’t sign and they don’t listen and insist on trying to sign to me anyway, such as what recently happened to me at Human Village.

I’m realizing more and more as I talk to different hearing adults that they just simply don’t understand why I don’t sign and how I can still communicate with others without sign language. People are especially confused by how I managed to get through school and to survive in a hearing world without sign language. I want to use this blog post to try to clear up some of the confusion.

Here are 5 reasons why I never learned sign language. As you read through my reasons I ask that you remember that I am and have always been mainstreamed. I am lowercase d deaf meaning that I have significant hearing loss but I live in a hearing world. I have never been a part of the capital D Deaf community. I support Deaf culture and sign language and the capital D Deaf community, but this is not my world. My experiences are unique to me just as someone else’s are unique to them. What worked for me isn’t right for everyone and vice versa.

1. It Wasn’t Practical.

I was first introduced to sign language when I was five and in the process of enrolling in kindergarten at Oakview Elementary School. My speech teacher, Mrs. Smeltz, offered to teach me sign language. My parents asked me if I wanted to learn it. They were very supportive of it but ultimately allowed me to make my own decision. I decided against it because it didn’t interest me, mainly because I didn’t know anyone that spoke sign language. It seemed to me at the time that learning it would be a waste of time and not worth the effort because I wouldn’t really have anyone to sign to. My parents would have had to learn sign language in order for me to sign with them and any friends or loved ones or honestly anyone I’d want to communicate with would need to learn how to sign in order to talk to me. It seemed much easier for me to learn how to communicate in spoken English and to learn strategies on how to exist in the hearing world than it was to have everyone I wanted to talk to learn sign language.

2. Nobody Cares About Sign Language (Except the Deaf Community).

If you are capital D Deaf, you care about sign language. It’s very, very, very important to you. Sign language is your world, and I get that and support it.

But I’m not capital D Deaf. I am lowercase d deaf living with hearing loss in a hearing world where most people don’t really care about sign language. Some people might choose to study it for fun or as a hobby, but a lot of people don’t really take it seriously.

Unfortunately, this can make learning it very difficult, especially if you try to learn it later in life like I did.

I tried to take ASL in college as an elective at Rowan University, but at the time I was enrolled in undergraduate studies (September 2010 – December 2012), it wasn’t an option. I remember asking about this before and they said they weren’t offering because they didn’t have the money/funding for it and there wasn’t an interest. This is no longer the case…ASL is seen as being almost trendy now and there are classes (which I’ll get into in a later point), but that was unfortunately not the case when I was an undergraduate student there. One of the biggest problems with how people view sign language is they see it as a hobby rather than as an actual language. This is a problem because people lose interest in hobbies and pass them off to the side to forget about when they get bored. Languages on the other hand are seen as essential communication skills needed to survive in the world. ASL sadly is not viewed in this light by people outside of the capital D Deaf community.

I to enroll in a non-credit course at Gloucester County Community College multiple times to learn ASL. It was always cancelled though due to low enrollment. They couldn’t get enough people to sign up for it as a non-credit class to make enough money to pay the instructor I guess. People will enroll in ASL if they can get college credit. It’s often seen as an “easy” and “fun” class to take for credit. But when people aren’t getting something out of it for themselves (they don’t see learning ASL as being important, especially since many of them don’t know anyone who is capital D Deaf…), they don’t see a point in learning it.

3. Learning Sign Language Was Too Expensive.

I know what you’re thinking.

“This isn’t true.”

“My best friend’s cousin’s dog sitter is fluent in sign language and could teach you for free…”

“There’s YouTube!”

“Blah blah blah insert random noise/nonsense here.”

Okay, first of all when the concept of sign language was first introduced to me back in/around 1995, there was no YouTube.

As stated in my previous point, I didn’t want to learn sign language as a kid and could you blame me? A five year old usually has better things to do or other interests…

As mentioned in my last point, the non-credit courses were constantly cancelled due to low enrollment. These did cost money and at one point my family and I shelled out a few hundred dollars so the whole family could learn it together, but it ended up being refunded to us all after the course was cancelled.

The non-credit courses were about all that I could afford. With Rowan not offering ASL courses for credit my other option would be to take the classes at a local community college for credit but it wouldn’t be covered by my financial aid/loan and I couldn’t afford to spend that kind of money on a class that wouldn’t even count towards my degree.

Another issue with learning sign language for free – while people definitely mean well, the people offering to teach it often are not fluent or experienced in sign language. They may know the basics and a few sentences here and there but not enough to really hold full conversations in sign language, which makes it not entirely practical. Those who are really fluent and certified to teach sign language typically want to be paid for their services so they teach the college classes which I already stated I couldn’t afford to take. This isn’t true for everyone of course, but it is true in a majority of cases.

4. Learning Sign Language Wasn’t Worth the Trouble.

For some unknown reason, learning sign language was designed to be the toughest subject I could ever study or learn. I have been working to teach myself German recently and it has been a much, much, much easier experience than learning sign language which is just ironic.

Here’s a list of some things I think are easier to learn for me than sign language:

  • Mandarin Chinese
  • Amish quilt-making
  • Homemade cheese
  • Calculus
  • Quantum Physics
  • Flying an airplane

I’m serious. This has been made to be impossible for me to learn.

Backing up a bit, remember how I said that Rowan University *did* in fact get an ASL course after I finished my undergraduate studies?

Well, I tried to enroll in it as an elective as a graduate student. I tried to make my case that this course would be perfect for my graduate research since my Master’s thesis was a memoir on my cochlear implant/deaf experiences. The writing department and professors such as Dr. Drew Kopp were so supportive of this and really tried to advocate on my behalf to make this happen.

But it always comes down to one person who has a little bit too much power and is the final decision maker…

I don’t know who that one person is, but if you’re that person and you’re reading this now – just know I’m glaring at you from my computer screen. Yep. Glaring. Mad hard glare.

So here’s the shortened version of what actually happened:

Since I was a graduate student, under Rowan University’s policies I was not permitted to receive graduate level credit for what was an undergraduate class. I would need to do something more to have the work qualify as graduate-level work.

Okay, that makes sense, right? No problem. I was planning to use this course for my research for my MA thesis anyway. I would take the course as a form of an independent study and keep a research journal and check in with Dr. Kopp who would be my adviser of the project. I just finished taking his Core II course where I had to keep a research journal as I conducted research for my MA thesis anyway. This would be essentially a continuation of the work we’ve already started together.

But that one person who I am glaring at through my computer right now said that wasn’t enough.

Instead I needed a detailed description of what exactly I’d be studying and using for my research. I needed to create a very, very, very detailed research proposal about how I’d be studying students. I needed to explain what I’d ask students, who would participate, how their data would be used, and so forth. It was so much more than what I had intended to do. I wanted to learn the language, not how students used their experiences or what they thought of the course or whatever, but if it got me into the classes, I was willing to comply.

But of course it wasn’t that easy. Nothing in life is ever that easy – I had to submit a research proposal to the IRB and have it approved.

It took me several weeks that summer to put together my application for the research proposal. There were so many parts and it needed to be as detailed and specific as possible. I also realized I would need to hire an intern to help me with my research along with a videographer to film students. I would also need permission from the students. There were so many different loopholes and approvals I would need. Dr. Kopp worked with me every step of the way to help me in writing down the steps and just what I would need. We didn’t submit the application until the last minute when we were confident we had covered all of our bases.

I think I worked harder and longer on that application that I did in most of my graduate level courses combined.

And yet, the application was STILL denied for many, many, many different reasons. The overall theme was that they needed more specific information and more approvals from people involved.

I was tired and getting burned out and the class wasn’t even approved yet, let alone started.

After having my application rejected I decided not to move forward and just accept that I wasn’t going to learn ASL that semester (or even study people who would learn it). I accepted my next point…

5. I Wasn’t Meant to Learn Sign Language.

God’s ways are better than mine. Every time I tried to learn sign language he put roadblocks in my path that prevented me from learning it. Sometimes this seemed extreme, as was the case with the hardships I faced trying to take the ASL course in grad school. He simply did not want me to learn it. I will never know exactly why he didn’t want me to learn it until I am face to face with him in heaven and have a chance to actually ask him, but I do have a few theories.

Have I had learned sign language, my life would be very different. I may not have been mainstreamed like I am today and I may not have accomplished all that I have. I know that these is controversial and this statement may infuriate anyone from the capital D Deaf community who may be reading this, but you can’t deny the fact that it’s true:

Not being able to interact in the hearing world will hold you back in society. Is it right? No, it’s not. But it is the truth. 

If I learned sign language from an early age and made it my dominate language and chose to become a part of capital D Deaf culture, I may not have been as prepared for the “real” world because my communication skills may not have been as good. I wouldn’t have had to rely on lipreading as much and I wouldn’t have learned ways to navigate the hearing world because I wouldn’t have had to. I probably wouldn’t have went to mainstream school, let alone college, and wouldn’t have had the same experiences and may not have had as many job opportunities.

I know it’s not right, but the world is designed to operate for people who can hear and while it’s discrimination, employers get away with it. Most employers don’t want to hire someone who can’t hear, especially if they need a lot of accommodations such as sign language interpreters. These things cost money and people don’t want to have to pay for it and if employers aren’t the ones responsible for paying for it (ex – if health insurance or disability services cover it…I admit I’m not entirely sure how this works) it still won’t change the fact that employers will view it as a hassle that they may not want to deal with. Meetings will take longer, phone calls may go on unanswered, and work days may be less productive. Again, I’m not at all saying I agree with this. It’s horrible and it should not be this way, but you can’t deny the fact that this is how the world operates and even anti-discrimination laws can’t change the way people think and feel – that’s something only God can change.

If you want to get ahead in life, you need to be able to sell yourself and adapt to the outside world, knowing that a majority of people exist in a hearing world. This is similar to how a majority of the world speaks English (and most of the US). If immigrants want to get ahead and make a future for themselves in America, it is very wise for them to learn the language. We can and should support them by trying to speak their native language or becoming familiar with it and offer translators, but at the same time it is easy for them (and perhaps more practical) to learn our language then having all of our people try to learn theirs.

Have I had learned sign language, I may not have ever gotten cochlear implants. I know that this isn’t the right path for everyone to take, but it was the right path for me. My cochlear implants have opened a whole new world of opportunity for me and greatly improved my quality of life. If I had sign language then getting cochlear implants wouldn’t have mattered or been a priority for me and I would’ve missed out on so many amazing experiences (not to mention sounds!)

And yes, I did try to learn sign language post-cochlear implants. I am not sure why God still doesn’t want me to learn it, but I even have my theories about that, too. I am still training my brain to hear sounds and I imagine I will for the rest of my life since there’s always something new to hear. My hearing is fantastic now and “almost” perfect, but it will never be natural. I will always need a minute to think about and process what I am hearing. I’m never going to “just hear” – my body is not capable of that. If I would’ve learned and became fluent in sign language I may not have had the need to work so hard at hearing the sounds and training my ears post-cochlear implants. Simply put, I may have gotten lazy with my training and rehab.

Sign language is important and should never go away. I understand the point oralists were trying to make way back when and I agree that being able to communicate in a hearing world without sign language will help the deaf to advance in society. However, sign language is a tool or a strategy that works better for some than for others. For some people they may be the son or daughter of Deaf parents born into the capital D Deaf culture where sign language makes the most sense for them to use. For others like myself, lipreading and cochlear implants are better tools to help prepare us for the hearing world we choose to live in.

There are some people who absolutely need sign language, but I am not one of those people and I shouldn’t be made to feel bad or wrong about my decisions. As a child I was able to get by in school and society through lipreading, sitting in the front of class, reading a lot of books and text to gather messages, and relying on others to lend me their ears when in need. As I got older, cochlear implants gave me nearly perfect hearing. In either case, I managed without sign language and I regret nothing. I was still able to live a happy and fulfilling life and never felt cut off from communication.

Everyone has their own communication preferences, especially those who are living with hearing loss. It is important to remember that no two people are exactly the same and just because some individuals with hearing loss sign, doesn’t mean that they all do and it’s perfectly fine if you choose to sign or not to sign. It’s a personal decision and you should never feel the need to apologize for the way you wish to be spoken to. People should respect your decision and if they don’t understand it, they should take the time to ask questions and educate themselves so that they can learn rather than judging, speaking for or on behalf of someone else, or flat out ignoring someone’s requests or communication preferences.

 

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The purpose for today’s blog is to answer some of the most commonly asked questions about deaf people. These five questions came from the most searched terms related to the keyword “deaf” according to SEMrush. Please note that I am answering based on my own personal experience as a lowercase deaf individual who has profound hearing loss but has never been a part of the Deaf community.

1. Can Deaf People Drive?

Yes, and I just ran over the last person that asked me that question.

But seriously, why wouldn’t a deaf person be able to drive? If you’re deaf-blind then okay I can definitely see why you wouldn’t be able to drive (no pun intended), but this question specifically calls out deaf people, not deaf-blind people. While being able to hear things like sirens would certainly be beneficial for driving, it’s not actually a requirement so long as you can see.

Did you know most deaf people actually have really strong perceptive vision? My boyfriend is always amazed by my ability to spot a car coming from miles away because I can always see the lights out of the corner of my eye. Since deaf people can’t hear, they rely on the eye sight to make up for it. What this means in terms of driving is that deaf people will always be alert and aware of their surroundings and they will be able to see the flashing sirens, even if they can’t hear them. Some may even argue that BECAUSE deaf people can’t hear they will actually be more careful and cautious drivers. That of course is up for debate. I’ll let you know the verdict on that one once I receive my license. 😉

2. What language do deaf people think in?

Seriously? This question is so dumb it makes my brain hurt.

Deaf people think in the same language(s) they speak in. This goes for all deaf people including those who are deaf with a lowercase d, those who are culturally Deaf and use sign language, and those who are non-verbal. Just because you’re deaf does not mean you lose your ability to think or that the way in which you think is any different from that of a hearing person.

Also, those who are non-verbal may still be able to understand spoken and written language and will still very much have a native language (or maybe even more than one). I think that one thing that most people get wrong about deaf people that are non-verbal is that they assume that because they are non-verbal they must be dumb. In actuality, most deaf people that are non-verbal choose not to speak with their voice because they can’t hear themselves speak and it’s a self-conscious thing or not something they feel comfortable with. Some of them may not have had speech therapy, so they may be aware of the fact that their pronunciations may seem strange to someone who is hearing which may make them feel uncomfortable. Others may have limited hearing and not like the sounds of their own voice. Whatever the case may be the important takeaway here is that even non-verbal deaf individuals can be highly intelligent and most often are.

Similarly, some people may be under the wrong impression that culturally Deaf individuals that are fluent in sign language must not be able to think in that language since sign language is a non-verbal language. This assumption is also false. I could be wrong, but I have a hard time imagining deaf people thinking in terms of signs. Rather, I think they think like you and me do in their own native languages.

It’s important to note here that sign language is not a universal language; there’s actually many variations of it. American Sign Language most closely resembles the French written language, but there’s also British Sign Language, South African Sign Language, Afghan Sign Language, and hundreds others even including Jamaican Sign Language! While not a verbal language, they still hold many of the same structures as verbal and written languages do including having verb tenses, parts of speech, subject-verb agreements, etc. When deaf people think I believe that they are thinking in terms of these sentence structures even if they aren’t actually hearing spoken language.

3. Can deaf people talk?

This kind of goes back to what I was saying in my last answer. Generally speaking, the answer is yes nearly all deaf people are CAPABLE of talking. However, some Deaf people may choose not to talk with their voices.

It’s important to note that many Deaf people, and even myself as a lowercase/non-culturally deaf individual hold the belief that you don’t need to use your voice or to speak to communicate. “Talk” means to say something verbally, but “communicate” means to simply share or exchange information, news or, ideas. There are many ways in which a person can communicate. Many Deaf people prefer to use sign language to communicate, but even that isn’t their only option. For me personally I prefer to communicate via social media, E-mail, text messages, and hand-written notes.

4. How do deaf people think?

With our brains, duh.

This bothers me though since so many people think that deaf is synonymous for dumb or learning disabled. Yes, some deaf people have other disabilities including learning disabilities or lower IQs, but as with all things in life, this doesn’t mean ALL deaf people have learning disabilities or low IQs.

In fact, there are many deaf people who are highly intelligent. Some of the smartest deaf people include:

  • Laurent Clerc – The first deaf teacher in America who founded the very first school for the deaf in North America. He was extremely influential in showing that not all deaf people are “deaf and dumb”
  • Thomas Gallaudet – a teacher whom Gallaudet University is named after; he co-founded it with Laurent Clerc
  • Heather Whitestone McCallum – The first, and quite possibly to this day only, deaf Miss America. She is an influential advocate for deaf rights and she also served on the United States’ National Council on Disability in the past.
  • Juliette Low – The founder of Girl Scouts in America
  • Rush Limbaugh – An American talk show host and Republican political commentator
  • Alexander Graham Bell – Inventor of the telephone
  • Vinton Cerf – the “Father of the Internet”
  • Thomas Edison – A famous inventor
  • Helen Keller – The first deaf-blind woman to earn a bachelor’s degree. One of the most famous women in US history.

Deaf people think in the same way that non-deaf people do. I know it may sound strange, but like I said earlier, you use your brain to think…not your ears.

5. How do deaf people date?

Girl meets boy.

Boy meets girl.

Girl likes boy.

Boy likes girl.

Girl asks boy out.

Boy asks girl out.

Girl and boy live happily ever after.

Boy and girl live happily ever after.

But no, seriously. Dating is dating is dating is dating. It really doesn’t matter if you’re deaf or hearing, it’s all the same.

With that being said, some deaf people only date other deaf people. This may be due to them having a lot in common with their hearing loss and being able to relate well to one another. Those who are capital D Deaf may choose to only date others who are either capital d Deaf or even lowercase d deaf because it fits in with their culture. These individuals use sign language as a primary language and likely attend a Deaf school and exist in Deaf world. They may have limited access to mainstream society, so this is probably what they are most comfortable with.

In my own personal experience I’ve only ever dated people who are hearing. It’s not that I am against dating another deaf or even Deaf person, it’s just that I never really met one that I was romantically interested in and now I have found my forever person who happens to be hearing. This is likely because I’ve always been mainstreamed and lived in the hearing world. I do not know any sign language and I am not a part of the Deaf with a capital D culture. Dating a hearing person comes naturally to me and is what I am comfortable with.

Just as non-hearing people have their preferences and likes and dislikes and turn ons/turn offs and deal breakers and makers, so do deaf people.

But when it comes down to actual dating, it’s pretty much the same. Deaf people still like to go out to eat, watch movies, go bowling, go golfing, go shopping, etc.

Some deaf people may prefer to go to places that are quieter so it’s easier for them to hear. Well-lite places may also be helpful so that they can see and read lips or see signs more clearly if they use sign language as a primary means of communication. But for the most part, deaf people are just looking to have a good time the same way hearing people are.

I hope my answers to the five most commonly asked questions on being deaf helped to shed light on what it’s really like to live without hearing. The most important thing I hope you take from today’s blog post is that the deaf can do anything the hearing can do except hear. We all want to be treated the same as a hearing person would be treated because we *are* the same. Our ears don’t work but we still have the same needs, desires, passions, interests, and lifestyles for the most part.


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Hey guys, so the name of this blog is Confessions of a Def Deaf Girl, right? Well, I have a confession for you all today:

I never went to my high school prom.

Overall, I have no regrets. I didn’t want to go to my prom back in high school because junior year none of my friends went and my senior year prom was being held in my former hometown that I wanted no parts of. I thought it was a waste of money to spend hundreds of dollars going back to the town I lived in for nearly a decade and didn’t enjoy, so I didn’t go.

I don’t care much about skipping my prom, but sometimes I do still wish I would’ve had a chance to get all dressed up and go dancing. Needless to say, when I saw that Human Village Brewery was hosting their first ever “beer prom” where attendees were strongly encouraged to dress up in prom attire, I jumped at the opportunity to go.

So I grabbed my prom date, Evan, and we both donned some of our formal attire (nothing too crazy – we were worried no one else would go through with it!) and headed to the brewery!

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Me with my amazing prom date and forever love, Evan. 

Human Village put on such a great event. They closed the brewery early that night to prepare for the prom (which took place during what is normally their after-hours/closing time). They went with a beach/nautical theme and decorated the walls with pool floats such as blow up dolphins, whales, beach lizards, beach balls, etc. The owners all got dressed up in prom attire as well. They offered the first round of drinks for free with the purchase of a ticket and also had free snacks such as Chick Fil A chicken nuggets (with their famous sauce!), Philly soft pretzels, a veggie tray, popular prom appetizers like cocktail hotdogs, and more.

decorations

Human Village did a great job decorating the place with a beach/nautical theme!

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Beer flights – because everything tastes good and decisions are hard.

Evan and I’s friend, Ian Goode’s band, The Collective Force, performed all night long minus about an hour where some crabby old person (or at least that’s what I assume) tried to call the cops on the event due to noise. They played some popular prom and beach themed songs along with popular radio hits that everyone recognized. At one point everyone at the prom even joined together to form a love train going all around the Brewery!

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The Collective Force Performs at Human Village’s first ever Beer Prom 6/01/2019

Evan and I danced to a handful of fast songs and just about all of the slow songs. We are always looking for opportunities to go slow dancing together, so we finally had our chance at the prom and he made waiting 29 years to go to prom worth it. He’ll always be prom king in my heart!

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Sharing a passionate kiss with my prom date and forever love. Fun fact: in addition to it being prom, it was also our 20 month anniversary!

Towards the end of the night, however, Evan left for about 10 minutes to use the bathroom and I waited at our table by myself. During this time two girls approached me and asked me to dance with them. I felt a little strange about it since I didn’t know them, but there was a family-feel to this event with everyone dancing with everyone all night long and I assumed they just didn’t want me to be by myself at the table so I joined them and kept thinking in the back of my head Evan, please hurry up and rescue me.” 

A few minutes in they asked me if I was deaf. I told them that I was. The rest of the conversation went like this:

Girl #1: *Points to Girl #2* We both study ASL at Camden County College.

Me: Oh, that’s cool. I don’t sign.

At this moment Evan finally came back from the bathroom and hugged me from behind, which naturally scared the crap out of me since I never saw him and the girls laughed and introduced themselves to him as well.

Shortly after Evan and I were reunited, the conversation with the two girls resumed.

Girl #2: So, like, you can’t hear any of this music playing, right?

Evan: She has cochlear implants.

Me: Yes, I can probably hear better than you can right now. I can hear everything. I have about 97% total hearing with my cochlear implants. I just can’t hear when I take them off.

Girl #1: Do you ever take them off when you don’t want to hear?

Me: Oh, yeah. All the time. Especially when reading. 

Girl #2: That sounds useful. I wish I could do that!

Me: Yeah, it definitely comes in useful. It helps me to focus and concentrate more on what I’m reading.

The conversation then died down with them a bit as Evan and I went our separate way and had our own conversation. It was getting towards the end of the night and things were wrapping up. We were saying our good byes to Ian and talking to the owners about some of our favorite craft beers and asking about what some of there upcoming releases would be.

As we were leaving the two girls said goodbye to us and then thanked me for talking to them about my experience with cochlear implants and being deaf.

There was just one problem…

They were signing to me. Instead of actually saying “Thank you” they signed it to me. Fortunately I knew what this sign meant, but I still couldn’t help but be annoyed since I literally just explained to them how I didn’t sign.

This is one of my biggest pet peeves when it comes to people wanting to know more about the deaf/Deaf communities – people who aren’t from either community (meaning they have no hearing loss or real experience with those who do). People take ASL and automatically think it gives them a right to enter these communities or they think they know everything about what it’s like to be deaf/Deaf. But they have no idea.

Not everyone with hearing loss is a part of the Deaf with a capital D community. Not everyone with hearing loss knows sign language. I for example know hardly any sign language at all. Signing to me is highly ineffective as I won’t know what you’re saying. My preferred method of communication is verbal or text. In this scenario I could hear the two girls perfectly fine. I never once had to ask them to repeat themselves and I explained to them very thoroughly and clearly that I could hear everything perfectly fine – conversations, music, etc.

What bothered me the most wasn’t at all the fact that they tried to sign to me, it was the fact that they didn’t listen to me. Half of the problems in the world I think stem from people not taking the time to truly listen to one another. This causes miscommunication, confusion, and disconnects in how we converse with one another.

For those of you who are reading this in hopes of gaining a better understand of what it’s like to be deaf/Deaf or hard of hearing…for those of you who want to learn communication strategies for how you can best talk to those who are deaf/Deaf/hard of hearing my advice to you is short, sweet, and simple:

LISTEN.

Don’t just assume that every deaf/Dead/hard of hearing person you know automatically knows and prefers to use ASL.

Don’t assume that they are all verbal.

Don’t assume that because someone has cochlear implants they can hear perfectly fine (this is true in my case, but not true for everyone).

Assume nothing.

Ask everything.

Most deaf/Deaf/hard of hearing people will be more than happy to explain their communication preferences to you and to have a conversation and to educate you on their world, but if you choose our communication preferences for us and assume you already know everything, you’ll miss out on these opportunities to really get to know us and engage with us (and you may be completely rejected by us anyway if we can’t effectively communicate with you).

There is nothing wrong with being hearing and wanting to talk to someone who cannot hear, but there is everything wrong with choosing for someone else how to communicate with them and not listening to their needs or preferences. We have our own unique voices and HATE being silenced, so give us a chance to use our voices and sit back and listen to us before you speak for us.

 

 


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Image Credits: Pinterest 

SPOILER ALERT:

This post has nothing to do with drugs or anything you’d expect from Camden, so sorry to burst your bubble if that’s what you were looking for.

This post does still have a very special story about Camden though. I present to you, the newly revised (and most difficult chapter to write) of my novel, “Follow the Yellow Brick Road”.

Chapter 1: Follow the Yellow Brick Road

            Loss. It’s one word with a multitude of feelings attached to it including despair, emptiness, and hopelessness. For some people, loss means nothing. You can’t lose something if you’ve never had it to begin with, right?

That’s how hearing loss worked for me. My mother, on the other hand, can remember the exact moment when she discovered my hearing loss.

I was two years old and my mother would call out my name, but I never responded. The doctors thought it was just a phase or a case of the “terrible twos”.

“No, I know my daughter. She can’t hear me,” Mom would argue.

When my mom banged a handful of pots and pans together behind my back and I didn’t flinch, she knew something was wrong. Defying the doctors, my mom took me to see Miss Terri, an audiologist at Cooper Hospital in Camden, New Jersey.

After performing a series of hearing test, Miss Terri confirmed what we already knew: I had profound hearing loss.

The best way to treat it — or at the time, the only way to treat it — was with hearing aids. I needed them in both ears.

***

 After being diagnosed with profound hearing loss, I made the journey to Camden once every two weeks for speech therapy lessons. My mom and I would drive from our small condo in Washington Township to the big city every other week. On our way in, we’d pass endless food and street vendors selling everything from hot dogs to pretzels and even random t-shirts. It amazed me how at 9 o’clock in the morning people would still be out selling lunch foods. Everyone always had a smile on their face and seemed happy to be working.

“Mom, I want to live here one day. I love the city,” I said on our way in for my appointment.

“That’s because you don’t understand what this city is really like. It’s not safe.,” Mom explained. I’d understand it more when I got older and would see individuals hauled off by police for God knows why on more than one occasion. But as a child, it was a magical place with audiologists and speech therapists that thought the world of me and were helping me to hear and speak well.

Cooper Hospital had many departments and was easy to get lost in. Fortunately, they developed a system to help speech and audiology patients find their way around. By placing strips of yellow tape on the floor, patients could simply “follow the yellow brick road” to their appointment. Every time I had an appointment I knew to look down at the floor for that yellow tape and I’d sing along and skip to the tune of, “Follow, follow, follow follow follow the yellow brick road!”

Since speech and hearing worked so closely together, my appointments were run by both my audiologist, Miss Terri, and my speech therapist, Miss Vicki.

Miss Terri would always start my appointments by testing my hearing. She would lead me into a gray, audiology testing booth that was no more than 50 feet wide while my mom waited and watched outside in the hall. Miss Terri would then crookedly place a special pair of headphones over my ears and hook some wires up to my hearing aids and hand me a button.

“First we’re going to test the beeps. Push the button whenever you hear a beep. We’ll start with your left ear first before moving to the right,” Miss Terri explained.

I’d smile and nod and occasionally give a thumbs up to let her know I understood. I loved pressing that button. It felt like I was playing a video game where hitting the button was the equivalent of shooting the monsters and bad guys and freeing the victims. I never even noticed that the button didn’t get pushed half as often as it should have.

Once that portion of my hearing test was completed, I would be given a series of words that I’d have to say back.

“Say the word hot dog,” Miss Terri said.

“Hot dog,” I answered.

“Say the word baseball.”

“Baseball.”

“Say the word airplane.”

“Airplane.”

“Say the word ice cream.”

“Ice cream.”

“Terri, I’m sorry but I have to stop you,” my mom interrupted.

Miss Terri and I both looked up. I was doing so well with the words, what could possibly be wrong?

“She’s not actually hearing you – she’s reading your lips,” my mom said.

“I can fix that,” Terri said as she grabbed the sheet of paper with her word list.

“I’m going to cover my lips now. I want you to focus on what you hear, not on me.” Miss Terri said. I was nervous, but knew I had no choice but to try my best. I nodded in agreement.

“Say the word kite.’

“Height.”

“Say the word chair.”

“Stare.”

“Say the word sub.”

“The.”

“Say the word third.”

“The.”

“Say the word ran.”

“Than.”

I didn’t know what Miss Terri was saying, I could only guess, but I knew I was wrong. Thanks a lot, Mom. I thought.

When Miss Terri finished with the hearing test, it was on to either Miss Vicki for speech therapy where we would do different activities. One of my favorites involved using what I liked to refer to as the “magic mirror”. It was a long, oval-shaped mirror that rested in a tan wooden frame on wheels.

“Ready to use the magic mirror?” Miss Vicki asked.

“Yes!” I would exclaim.

“Okay. Let’s practice our “Sh” and “Ch” sounds,” they’d say. “We’ll start with ‘sh’ first.”

“Sh!” I said. It was easy for me to think of the sound as a syllable, as if Miss Vicki was the teacher and I the student, getting yelled at for talking.

“Very good!” she said. “Now, I’m going to give you a word. Can you say “choose”?

“Shoes!” I said.

“No, not shoes like on your feet. Choose like when you choose something to eat,” she said.

“Shoes!” I said.

“No, look in the mirror. You want to move your tongue up a little bit and touch your teeth,” she said.

“Tooze,” I said.

“Try again. Remember, you only want to touch your teeth a little bit, not a lot.”

“Choose?” I said.

“Yes, that’s right! Very good! Want to take a break and draw on the magic mirror?” she asked.

I nodded yes and reached for the bucket of magic markers, choosing the pink one first, my favorite color. I drew a big heart on the mirror with several smaller hearts for arms, legs, and even eyes. My little heart person, my favorite thing to draw.

When I finished my masterpiece, Miss Vicki would continue with our lesson.

“Okay, Kimmy. We’re going to play a game now,” Vicki said. I didn’t have the heart to tell her I hated being called “Kimmy”.

“You’re going to take this ball and throw into the trashcan across the room. But as you throw the ball, I’m going to give you a word to say and I want you to imagine your voice going with that ball. As you throw the ball you’ll want your voice to get louder. Got it?” she said.

I nodded. I wasn’t sure if I really understood, but the idea of throwing a playing a game sounded like fun. The game sounded like basketball, a game I’ve always enjoyed watching my dad play.

“Okay. Your first word is suitcase,” she said.

“suit case,” I whispered as I threw the ball.

Vicki threw the ball back to me. “Try again,” She said.“Remember, Mr. Loud Mouth. Your voice travels with the ball.”

I took the ball back from her and paused as I remembered Mr. Loud Mouth. “SUIT CASE,” I said.

“Very nice! You got it!” she said.

Being a toddler with profound hearing loss was easy. Nobody asked any questions about my hearing loss or questioned anything that I did or didn’t do. My parents couldn’t have been more supportive and understanding of my hearing loss. My sister paid no mind to it. And my audiologist and speech therapists couldn’t help me enough. I was a toddler without a care in the world. The only thing that made me different from any other toddler in the world was the fact that I couldn’t hear. As far as I could see, I was one in the same with the rest of the hearing world. Unfortunately, as I’d learn in my grade school years, not everyone saw things that way.

 

 

 

 


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Image Credits: YouTube

This week I read 1 Corinthians 14 and it made me think a lot about the history of American Sign Language actually. In 1 Corinthians 14, Paul is talking to the church of Corinth about speaking in tongues. He acknowledges the ability to speak in tongues as being a spiritual gift from God, however, he strongly urges the church of Corinth not to practice the speaking of tongues unless everyone can do it. Paul explains this by stating, “He that speaketh in an unknown tongue speaketh not unto men, but unto God: for no man understandeth him; howbeit in the spirit he speaketh mysteries.” Men that possess the spiritual gift of speaking in tongues can use it to speak to God, yes, but they shouldn’t use it to speak with the rest of the congregation because they won’t be able to understand him. When we enter the church it should be to honor and glorify God and to help our brothers and sisters and Christ to do the same and to better come to know God and his words. If we can’t even understand what the members of the body of Christ are saying then how can we really come to know God and learn at church, let alone properly worship him in his home?

Paul went so far as to suggest that speaking in tongues could be the equivalent of just making noise without understanding what that noise actually means in verses 7-11. Here he states:

And even things without life giving sound, whether pipe or harp, except they give a distinction in the sounds, how shall it be known what is piped or harped? For if the trumpet give an uncertain sound, who shall prepare himself to the battle? So likewise ye, except ye utter by the tongue words easy to be understood, how shall it be known what is spoken? For ye shall speak into the air. There are, it may be, so many kinds of voices in the world, and none of them is without signification. Therefore if I know not the meaning of the voice, I shall be unto him that speaketh a barbarian, and he that speaketh shall be a barbarian unto me (1751).

Wow, definitely a lot of things going on in these verses! Let’s look at the first part of this first, verses 7-8:

“And even things without life giving sound, whether pipe or harp, except they give a distinction in the sounds, how shall it be known what is piped or harped? For if the trumpet give an uncertain sound, who shall prepare himself to the battle?”

A deaf person may never hear the sounds of a pipe, harp, or trumpet. You could blow that trumpet as hard as humanly possible and that deaf person may never prepare himself to battle if that’s all he has to go on because he’ll never know. To him, the sound of a trumpet is completely meaningless.

For me prior to getting my cochlear implant, I missed out on many sounds. I’ve discovered many of them since getting my cochlear implants, but every day I am also still learning more and more sounds. It’s not uncommon for me to jump a little in class as a train goes by or someone talks or fidgets or I hear an unknown sound. I’m constantly trying to define the source of the sound and what it means. This is what the congregation must’ve been like back in Paul’s time when they tried to understand what the speaker was saying when he spoke in tongues that they did not understand.

I also relate this to ASL. The Deaf community needs ASL so that they can understand what is being said in the church. To them, the verbal communication means nothing. They have no idea what the pastor is preaching without the use of ASL. They will never hear the gospel or understand the message that day. The pastor might as well be speaking in tongues because they’d never know otherwise. Here, Thomas Gallaudet’s arguments for using sign language in the church makes sense.

But hold that thought…

Thomas Gallaudet and the manualists didn’t just think that the use of sign language in the church would help the deaf to better understand sermons; they took it a step further. Gallaudet along with the other manualists felt that sign language would bring the deaf closer to God. In Tracy Morse’s dissertation, “Saving Grace: Religious Rhetoric in the Deaf Community,” she quotes Douglas Baynton’s Forbidden Signs when she says:

For manualists, this view was interpreted in Protestant terms: sign language was an original language and meant “closer to the Creation,” not inferiority (Baynton “Savages” 98). However, for oralists, sign language was associated with lower evolution or “inferior races” (Baynton Forbidden 9). Oralists made arguments that deaf students needed to learn spoken English and lip reading or they would be viewed as animals or savages (Morse 51).

Now, let’s look back to the scripture and focus on verse 11 which states, “Therefore if I know not the meaning of the voice, I shall be unto him that speaketh a barbarian, and he that speaketh shall be a barbarian unto me.

The word “barbarian” here is what stands out the most to me. Do you know who else really loves the word “barbarian”? Alexander Graham Bell who was NOT a manualist like Thomas Gallaudet, but rather an oralist that believed that the deaf needed to move away from sign language and instead learn to speak verbally and read lips and live in the hearing world.

So, what am I saying here? Do I think that this verse is saying sign language is barbaric? Absolutely not, but at the same time, it could be absolutely so. So it’s a yes and a no for me.

Here is what I think that verse is saying, or what the core message Paul has for the church of Corinth is:

We need to speak in a way that people can understand what we are saying in church so as to not cause confusion or anything that can inhibit man’s understanding of the gospel and man’s ability to honor and glorify the lord.

Back in the time of the church of Corinth, speaking in tongues was a barrier for people in the church because it might have benefited the person speaking it, but it did not benefit the church. Paul is calling for the unity of the church – everyone needs to unite as the body as Christ and work in a way that best serves God and not themselves and that involves speaking a universal language they can all understand.

What does this mean for the deaf in the church? Should they be forced to lip-read and practice the oral method? No. I think the deaf should have a right to hear the sermon in a way that is the most accessible to them. Many churches offer the hearing loop to help hard of hearing and deaf people to hear (depending on the degree of hearing loss of course). If a deaf person needs an interpreter, they should have access to it.

If the majority of church attendees are Deaf and rely on sign language, then perhaps that church should consider doing full sermons primarily in ASL, as that is what will benefit that church and help the attendees to learn and honor and glorify God the best.

We don’t have to worry too much about the speaking of tongues in modern day. 1 Corinthians 13:8 says, “Whether there  be tongues they shall cease”. People cannot speak in tongues today (I acknowledge that many claim they do – I have my own feelings on that but I’ll be nice and go the route of “no comment” on that…). I think that whereas the church of Corinth had to worry about the speaking in tongues today our issue is more or less about what language or what style/tone to use in church. I think it all depends on the congregation and choosing what is the most accessible to your church goers.

Going  back to the discussion on the deaf community…

In Baynton’s Forbidden Signs he explains how many oralists feared that by relying too heavily on sign language the deaf community would isolate themselves from the rest of the world. He stated:

Like their contemporaries in other fields of reform, oralists worried that the lives of people were diminished by being a part of such communities as the deaf community; they would not, it was feared, fully share in the life of the nation. The deaf community, like ethnic communities, narrowed the minds and outlooks of its members. “The individual must be one with race,” one wrote in words reminiscent of many other Progressive reformers “or he is virtually annihilated”; the chief curse of deafness was “apartness from the life of the world,” and it was just this that oralism was designed to remedy. Apartness  was the darkness manualists redefined for a new world (Baynton 32).

Sign language was (and still is) very different from spoken English or any spoken language, really It’s different from what the majority is speaking and when people can’t speak our language, either they or we miss out. Isn’t this the same as what was going on in the church of Corinth in a way? Paul wanted to see the church of Corinth come together to honor, serve, and glorify the Lord and to unite as the body of Christ. Speaking in tongues was something very few church members could do that caused a separation or divide between those who could speak and understand it, and those who could not. It became a distraction that kept people from coming to know God.

Is sign language a distraction that keeps the deaf from doing things in their daily lives? It is obvious that it causes a divide from the hearing and the deaf worlds. In the church, it can make things better for the deaf and I can see how it can strengthen their personal relationships with God, but if we only signed and didn’t speak spoken English, the rest of the congregation would suffer. I don’t see sign language as being a form of language that brings a person closer to God in the sense of it’s a superior or holier language than standard English. I think it’s just another language that for some is their primary and therefore the best and for others is just another language in the world that exists but one they don’t partake in or use in their daily lives.


Hey guys I apologize for the lack of updates. Been a bit crazy over here lately since my surgery, but I’m finally starting to get back into the swing of things today.

I had the surgery for my second cochlear implant for my right ear on November 30th. The procedure was almost identical to how it was with my first one with just a few minor differences. I had to be there a bit earlier for one. I had to be there at 6 in the morning which meant leaving my house by 5. I was pretty tired since I stayed up late that night watching what turned out to be an incredibly disappointing Patriots’ game. After the game I couldn’t fall asleep because I was way too excited.

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My mom and I barely slept at all the night before… we were both too excited!

I got to the hospital at 6am on the dot and everything moved very quickly at that point. I had some paperwork to fill out/sign and was taking back to the Emergency room fairly quickly where I changed into my gown and had to answer a series of questions. All of the questions were identical to the ones they asked last year and the answers were the same. I had to give them a urine sample and then they fitted me with my IV. I can never just simply get an IV though. You may remember from my first surgery they had trouble finding my veins and I had to have multiple people try to stick me. They got it in on the first try this time, but  might’ve gotten a little too close to the vein. I bled all over the place. For the next two days after the procedure I was trying to clean up dried blood from my IV. I swear I think I bled more from the stupid IV than I did from my actual procedure…

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I was really, really excited!

Dr. Willcox’s surgical team and all of the nurses and everyone involved introduced themselves to me and explained what they would be doing. They didn’t need to go into as great of detail as they did last year though since I already knew what they were going to do and I saw many familiar faces. Some of them remembered me, too and were very excited to see me which made everything all the more exciting. I really liked Dr. Willcox’s assistant/the guy who was doing his residency with him. He had a great smile and was pretty attractive. My parents laughed at me when I told them this and said that I “must’ve been pretty high from the drugs they gave me” since he was apparently a lot older than me and “Not that good looking” haha.

I feel like I fell asleep much quicker this time around than I did last time. I don’t have much of a memory of everything before the surgery because I just feel like they put me on the table and I went to sleep. Which makes a lot of sense since I really didn’t get any sleep the night before so I quite tired. I feel like there was less machines hooked up to me, but that could just be because I was asleep and didn’t notice them. I had my cochlear on until I fell asleep at which point Dr. Willcox removed it until after the procedure which made things much better for me. Since I could hear I was able to relax a lot more and they didn’t have to keep telling me to lay down because I wasn’t all anxious to see what they were doing like I was with the first surgery lol.

They took me in for the procedure at 7am and I was back in the recovery room around 11am. I think I woke up around 11:30-12. I was very sleepy and struggled to stay awake. They kept telling me they were waiting to take me back to another room. I asked for my parents and they said they’d bring them up but that they knew I was done and that everything went well.

I felt much better after my surgery aside from being tired compared to how I felt after the first procedure. I didn’t have a sore throat, probably because they used a smaller breathing tube after hearing how I had a sore throat the first time around from the larger breathing tube. I also only felt slightly nauseous and dizzy. I did feel a bit of pain though. At first they only gave me a little bit of pain medicine. They gave me more after making me eat the worst-tasting saltine crackers in the world (seriously why do the crackers at the hospital always taste so bad? That thing was straight up cardboard…staler than stale…yuck!)

After successfully eat the sucky crackers, walking a bit on my own, and having the IV removed (which meant more blood all over the place), I was permitted to change back into my clothes and go home. I’d say I was home around 4 or 5pm. The whole procedure and everything didn’t take long at all.

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A Post-Op selfie!

Overall I felt much better and had an easier recovery the second time around. I think the fact that I had 1 cochlear and could hear made things much easier, too. I could watch movies which was a great way to relax.

I did have a set back on the 2nd day post-op though. I had to go back to Jefferson to upgrade my processor from the Naida Q70 to the Naida Q90. It was the last thing I felt like doing and my family and I didn’t think it was a good idea at all to go all the way to Philly 2 days affter surgery, but Advanced Bionics was going to be there since it was an early upgrade limited to very few people (I was one of the lucky chosen ones) and it was the only day I could go and do this, so I didn’t have much of a choice in the manner.

I did okay at first. I was dizzy, so I held my mom’s hand a lot. We took the car rather than the bus because we thought it would be easier/more comfortable for us. I did get pretty tired and didn’t want to be there, but I tried to make the most of it. The Q90 looks and works almost identically to the Q70. It is a little smaller and feels lighter though which I like. One of the biggest differences with it is that the programs are almost all automatic (the exceptions being sound relax and the aqua mic) which I like the idea of. Changing programs can be really annoying. I haven’t been in an environment too much yet where I can really see how it works, but my mom did vacuum and I noticed it blocked out the noise a bit (although I could still here it) and I could carry on a conversation and still listen to music and hear everything with it on which was cool. When the programs switch I can hear it switch over, too. I am excited to go to a crowded, noisy restaurant or something so I can really see how it works. Also, once the other ear is activated I’ll be able to unlock many more features that will allow both ears to work together which will be awesome.

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Image Credits: Sonova 

Louisa, the woman from Advanced Bionics (I forget what she said her name was) and Dr. Willcox (we saw him in the hallway) all said I looked great considering I was just 2 days out of surgery. By the end of the appointment I started to get weathered and worn out and very sleepy though. It was an important appointment, but very stupid to go out and do that much so soon after surgery…

I felt okay afterwards, but very tired so I took a nap shortly after getting home. It wasn’t until after dinner when I started to get into trouble. After dinner when I stood up to throw my trash away I suddenly got very lightheaded and everything started to go completely black. I immediately sat back down and had my parents give me a drink of Coke. I took my blood pressure and it was only about 55 for a top number! To give you an idea of how scary this was — it was about the same range as my grandmother’s blood pressure right before she died. My parents were scared of course but we were nervous about calling an ambulance and going to the nearest ER since that for me is Kennedy in South Jersey. Most South Jersey hospitals are awful, and that one is definitely one of the worst. We were afraid to go there and have them mess up Dr. Willcox’s work, so we decided to wait it out and just keep monitoring my BP. I drank more soda and high-sodium energy drinks and put my head down for a bit. We did get my BP back in the 100-range which put me out of the woods, thank the Lord!

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Image Credits: Meme Generator 

After that episode I took it easy for awhile barely doing much of anything besides sleeping, watching movies, coloring, and reading. I wanted to go back to work, working from home, that Thursday but decided it was best to just rest up so I took off for the rest of the week.

By last Saturday I was beginning to get a bit depressed. I felt useless. I wanted to go outside and do things and interact with people, but I knew I had to recover, especially after the whole BP issue. My depression was much better than it was after my first implant though, probably because I could at least hear this time around since I had one cochlear already.

I went back to working from home on Monday. It was a busy day back but it felt so good to be back in the swing of things. I did pretty well being back to work. I just got tired after lunch from my pain medicine and antibiotics, but I took a nap after work and I was fine.

I had my stitches removed on Wednesday. I was supposed to get them out on Thursday with Dr. Pelosi, but my surgeon decided to come in and do it on his day off instead because he really wanted to see me. My BP was a little low at 94. They don’t believe it was due to the surgery, but rather that I have been too relaxed. Dr. Willcox told me to be more active and that should help. I have been more sedentary than normal because I was afraid I was doing too much. Figures haha. I’m anxious to get back to the gym and taking long walks and doing more though! Getting the stitches out hurt more this time than I remembered from last time, especially the areas with the knots. There was one stitch that got my hair caught in it and that one really hurt to have taken out. I was glad to get them removed though!

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I had a few stitches…

Once my stitches were removed I met with Louisa’s assistant who’s completing her residency, Alyssa, to test the equipment and to make sure the electrodes all worked. It was just like last year. I was able to hear all of the beeps which seemed like a good sign. They seemed louder this time around, too. It was pretty exciting. I got to see my new silver processor, too. It looks really cool! I can’t wait for my activation so I can actually take it home and wear it!

Thinking of my activation, there’s a chance that we may be moving the date up a bit. I have it scheduled with Paula on the 24th (Christmas Eve) but Alyssa will be there on the 23rd so we’re trying to move it up to that date. The only thing is that Alyssa doesn’t have her license yet and isn’t normally allowed to do activations on her own. But my mom and I don’t have a problem with it at all. Honestly, I like Alyssa better than Paula and Louisa. I do like both Paula and Louisa, but Alyssa has a great personality, is very professional, and seems to really know what she is doing. Even though she isn’t licensed yet, I trust her and I know she’s helped with activations and knows what to do. They said they’d have to ask the board of directors for permission and would get back to us on what they say about it.

I finished my antibiotic and pain medicine yesterday. I was also finally allowed to wash my hair for the first time in 11 days which felt amazing. It was definitely getting pretty nasty lol. It didn’t really hurt to wash it. My ear feels completely numb still. I tried to avoid really touch it or rubbing around that area/the incision though. I have a lot of dried blood behind my ear too which I’m struggling to get off.

After my shower I took a look and tried to find my incision/where they shaved my hair. They were so neat with it that I really can’t even take a picture of it because you can’t see it lol. It’s kind of underneath my hair and completely invisible. Dr. Willcox is like an artist with how he does his cuts. It’s amazing.

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The first post-op shower is the best feeling ever.

Today was the best I’ve felt in nearly 2 weeks. I was still working from home, but much more with it. I didn’t take any pain medicine at all or even a nap. I cleaned the house when I finished working. I’m also back to eating completely solid food (that took awhile, even though I didn’t have a sore throat, it was hard for me to bite down/chew things for awhile because of the pressure it put on my ear).

I will really be back to my self on Monday. On Monday I’ll be back to working in the office and depending on how well I’m feeling, back to the gym as well.

I took a break from working on my book with my surgery, but I’m pleased to announce that it is almost complete. I met my goal of writing over 50,000 words in November during NaNoWriMo and have a total of over 90,000 words. I will of course need to update it with everything since going bilateral, but overall I’ve made great progress with the first draft and I’m excited to see it complete soon.

That’s about all I have for now. I’ll update after the 24th (or 23rd) after my activation! What an amazing Christmas gift and blessing this will be!

 


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Image Credits: Advanced Bionics

Last night I attended Advanced Bionics’ online webinar that was all about the new Q90 processor. This was really important for me since I recently found out that I am eligible for an early upgrade to trade in my current Q70 processor for the new Q90.

The webinar was very informative. The Q90 looks almost identical to the Q70 but it is smaller and thinner. It also comes with a few new features to help you to adjust to different sound environments and to block out distracting background noise better. It comes with the option of using a smaller battery that is about half the size of the smallest battery used by the Q70, but all of the sizes used with the Q70 are still compatible with the Q90 as well. The battery life is the same in the Q90 as it was in the Q70. One of the biggest advantages with the smaller battery size option (other than the obvious comfort) is that it will fit inside the AquaCase better.

The three new programs offered in the Q90 are the AutoSound, SoundRelax and EchoBlock.

The Auto Sound feature adapts automatically to the environment you are in. It helps you to better manage noise for more comfortable listening. Sound Relax makes sudden sounds more comfortable to hear. Advanced Bionics gave the example of a golf club hitting the golf ball or dishes clanking together. These sounds can be a bit annoying for a cochlear implant user, so with the automatic Auto Sound feature, this noise is softened a  bit to be more comfortable. It doesn’t affect alarms or safety sounds though, so you won’t have to worry about missing something important with this feature. Lastly, EchoBack is the one program that is not automatic. EchoBack allows users to hear better in noisy environments.

The Q90 makes me really excited about going bilateral in less than 10 days. I liked hearing about how there were some features that would be only available for bilateral cochlear implant recipients like the StereoZoom feature. There will be features that will allow users to stream sounds through both cochlear implants. They will work simultaneously together to support each other. This will help to create an overall better listening experience.

I asked one of the women doing the webinar if I would be receiving the new Q90 when I received my second implant on November 3oth (It’s not widely available yet, I’m just lucky to have been chosen to upgrade my Naida Q70 from my first implant for it ahead of time) and she said yes so I’m very excited about that.

Overall the webinar was very informative. I’m excited about the new Q90 processor. It doesn’t sound like it will be drastically different from the Q70, so it should be easy to adjust to.It sounds like it will help to give me clearer sound and an even better listening experience (if that’s even possible).